We are excited to present an ongoing series of webinars — web-based audio and slide presentations — with noted cognition researchers. We believe these sessions offer unprecedented access to the scientists who are actively advancing the field, and we are honored and pleased to be able to offer their perspectives on a regular basis.

We are also posting some of our Research 101 presentations. Our staff travels the country to meet with Ds affiliates to discuss the latest findings from our funded research, including the exciting updates from the clinical trials that had their genesis from LuMind RDS-funded researchers. Contact us if your affiliate is interested in scheduling a Research 101 presentation.

To listen to past webinars or view a presentation, click on the link.  You’ll be taken to a new window, where you can play back or download the session.

Research Webinar with Dr. Reeves and Dr. Worley – Johns Hopkins University

Join us for an update on LuMind RDS funded research out of Johns Hopkins University in Maryland. Drs. Reeves and Worley will educate and update us on the three projects they are working on related to improving Down syndrome cognition. Download the webinar here, you may need to download an auxiliary player available on the WebEx site. FYI – due to technical difficulties, the webinar starts a few minutes into Dr. Reeves’ presentation.

 

 

Grants Announcement Webinar

This is our favorite time of year! Learn how your donations are hard at work propelling discoveries from the lab bench to reality. Dr. Michael Harpold will describe the 2015-2016 recipients of $1.6 million in grants. Download the webinar here, you may need to download an auxiliary player available on the WebEx site.

 

Down Syndrome Research: The Latest from Dr. William Mobley, UCSD and Dr. Jamie Edgin, University of Arizona

Join LuMind RDS Foundation and funded researchers Dr. William Mobley and Dr. Jamie Edgin as they update you on their latest efforts in Down syndrome cognition research.

Dr. Mobley, from the University of California in San Diego and his colleagues are studying the study the over-expression of the APP gene, which is located on the human 21st chromosome and associated with impaired cognition and Alzheimer’s disease neuropathology in mouse models of Down syndrome. Dr. Mobley is working to identify and investigate compounds that can regulate the proteins produced by the APP gene.

The University of Arizona’s Dr. Edgin is continuing to refine and validate the first set of Ds-specific battery of cognition tests (Arizona Cognitive Test Battery or ACTB, and Arizona Memory Assessment for Preschoolers and Special Populations or AMAP) to measure cognitive function involving both the developmental intellectual disability and Alzheimer’s disease. Dr. Egin is also extending her sleep studies with the ACTB to define the relationship between sleep disturbances, including sleep apnea, and impairment of cognitive development which can provide new insights to address sleep disorders to improve cognitive function in children and adults with Ds.

Download or listen to the webinar here.

 

THE ROLE OF RESEARCH IN THE LIFE OF A PERSON WITH DOWN SYNDROME: PROGRESS, UPDATES, AND A LOOK INTO THE FUTURE

Enjoy a presentation that discusses research from three perspectives, followed by audience questions:

  • A Decade of Discoveries and a Cognition Research Update – Dr. Michael Harpold, LuMind Foundation Chief Scientific Officer
  • Connecting the DS Community with Researchers – Dr. Melissa Parisi, National Institutes of Health (NIH)/NICHD, DS-Connect®
  • A Community Collaborating to Promote Research – Diana Merzweiler, Executive Director, Down Syndrome Louisville

Link to the webinar here.

 

Research 101 Logo

Down Syndrome Research 101: Dramatic Progress in Translating Discoveries into New Therapies

Dr. Michael Harpold and Carolyn Cronin presented at the Down Syndrome Association of Greater Richmond. Dr. Harold discussed the latest findings in Ds research. Thank you DSAGR for hosting! View View Dr. Harpold’s presentation here.

 

Down Syndrome Cognition Research: Memory and Sleep 

In this special Mother’s Day presentation, Dr. Jamie Edgin provided an update on the current state of work on memory formation and sleep-dependent learning in children and young adults with Down syndrome. She also highlighted some other recent discoveries and new directions in her lab, including progress on the development of new cognitive assessments for young children with Down syndrome.  Click here to view the replay.

 

DS Cognition Research: A Mother’s Perspective

For this special presentation we’re honored to be joined by Professor Sue Buckley, OBE, founder of Down Syndrome Education International and a pioneer in the field of education and early intervention for children with Down syndrome. With experience involving most aspects of the development of children and adolescents with Down syndrome, her special area of expertise is cognitive development, particularly language, literacy and memory development. She is a noted speaker, writer, and researcher; she is also the parent of a child with DS. Sue is joined by a panel of mothers who’ll tell their stories and share their reasons for supporting cognition research.

Click to listen in.

 

Michael M. Harpold, Ph.D.

Down Syndrome Cognition Research 101: An Introduction

In this special presentation in celebration of World Down Syndrome Day, Dr. Michael Harpold of the LuMind Foundation and Dr. Omar Khwaja from Roche joined us for a general overview of cognition research; a look at current initiatives; and an update on ongoing clinical trials of treatments to improve cognition in individuals with DS.

Stanford University's Dr. H. Craig Heller Dr. H. Craig Heller, Stanford University
Down Syndrome Cognition Research: Sleep and Circadian Rhythms

Dr. Heller, an expert in the area of sleep and co-director of Stanford’s Down Syndrome Research Center, joined us for our January webinar to discuss the roles that sleep and circadian rhythm may play in the cognitive impairment that occurs in people with DS, and described the potential of pentylenetetrazol (PTZ) to improve cognition.

Johns Hopkins University's Dr. Roger Reeves Dr. Roger Reeves, Johns Hopkins University
Update on Down Syndrome Research
Tuesday, October 16, 2012In this special Down Syndrome Awareness Month collaboration between the LuMind Foundation and the National Down Syndrome Society (NDSS), Dr. Reeves joined us to detail the current landscape of cognition research, and describe what lies ahead as scientists and supporters look to the future of improved learning, memory, and speech for people with DS.