We accelerate research to increase availability of therapeutic, diagnostic, and medical care options and
we empower families through education, connections, and support.

Together, we are a streamlined organization leveraging the strengths, talented teams and volunteer leadership of both organizations to reach the shared vision, mission, and goals. Hampus Hillerstrom will lead LuMind IDSC as President/CEO. Beth Sullivan, former Chairman of IDSC, joins as Senior Director of Community Engagement. Michelle Slape, former Executive Director of IDSC, joins as Director Great Wolf Lodge Events and Special Projects. In addition, former IDSC Board members and volunteers Linda Nargi, Maria Dellapina and Jennifer Smolka will join the LuMind IDSC Board of directors. Download our frequently asked questions to learn more about what this means for families, researchers and affiliates.


“We are very excited to share on this World Down Syndrome Day, the unique combination between two like-minded organizations that both have a great drive and collaborative spirit,” said Hampus Hillerstrom, President/CEO of LuMind IDSC Foundation. “LuMind partnered over the last year with many organizations to advance our mission for our families, and this combination is a natural step in enabling us to more effectively and rapidly serve our families. We believe that together our community will benefit more and we can achieve more.”

Beth and Oliver Sullivan“We are thrilled to share this exciting news and to move forward as one organization with shared values, spirit, ideals, and goals,” said Beth Sullivan, Senior Director of Community Engagement, and former Chairman of IDSC. “Our organizations have worked closely together over the past year and this seems a natural fit. We can’t wait to hit the ground running and begin our combined work to empower and connect families, increase research awareness and accelerate research that will ultimately benefit all of our families.”