On May 21, 2016, the best and brightest in cognition research will be celebrated at the Sky’s the Limit Awards Gala in Seattle. Click here to join us at the Gala or the free research presentation.
Let’s meet our honorees…
Dr. David Cox Rising Star Award – Dr. Michael Rafii, University of California, San Diego, for his work on the first clinical trial just started to study Alzheimer’s in adults with Ds.
Dr. Rafii is a board-certified neurologist and Director of the Adult Down Syndrome Clinic at the University of California, San Diego. His work focuses on better understanding the link between Alzheimer’s disease and Down syndrome. Dr. Rafii leads multiple research programs including the Ds Biomarker Initiative (DSBI). He is also Principal Investigator of an NIH-funded, multi-center clinical trial of the first immunotherapy to treat Alzheimer’s disease in people with Down Syndrome.
Dr. William Cohen Researcher of Distinction Award – Dr. Roger Reeves, Johns Hopkins University, for his strong research work, representing the discipline, and bringing several new researchers in the field through his consortium project.
Roger Reeves, PhD is a Professor in the Department of Physiology and the Institute for Genetic Medicine at the Johns Hopkins University School of Medicine. His early work mapping the counterparts of human Chromosome 21 genes in mice was a key element in the development of the most widely used model of Down Syndrome, the Ts65Dn mouse. His interests within Ds include clinical studies of cognitive function and susceptibility to congenital heart disease, and the genetic bases for individual variation in the presence of Ds among many other areas of inquiry.
Luminary Award – Stephen Lazare, Mary Costello Lazare, and Anthony Providenti for a decade of work on the ROMP for Research in New York, raising almost $2 million for cognition research.
Anthony Providenti is Vice President of Strategy and Development in the Global Animal Health Group at Henry Schein in Manhattan where he has worked since 2003. He along with the Lazares, is co-founder of Romp for Research. His motivation since the event began is his son, Troy.
Anthony is committed to meeting and engaging other families in the Down syndrome community, and is dedicated to raising awareness about Down syndrome. As co-chair of the event, he continues to leverage his business connections to ensure Romp’s success each year.
Mary Costello-Lazare and Steve Lazare became involved with LuMind RDS Foundation soon after the birth of their daughter, Anna, in 2003. In 2006, they co-founded the Romp for Research, a New York City-based event that has raised awareness and nearly $2 million for cognition research.
Mary, a retired prosecutor, has co-chaired the Romp since its inception. She donates her beautiful hand-made quilts to the fundraiser each year and gets other crafters to contribute their wares to the silent and live auctions. Mary also serves on the board of her local Special Ed PTA among other volunteer activities. Steve, a Manhattan-based attorney, served on the foundation’s board of directors for seven years, including stints as board chair and vice-chair.
Founders’ Award – Hayes Mechanical for their continued and growing golf events in support of Down syndrome cognition research. Terry AnCel, president of Hayes Mechanical will be accepting the award on behalf of the firm.
Terry AnCel, Hayes Mechanical and its employees have been enthusiastic and ardent supporters of Down syndrome cognition research. Founded in 1918, Hayes Mechanical is a pioneer in the boiler, construction and repair industry. Hayes employees and other volunteers run four charity golf events annually to raise funds to benefit LuMind RDS. These golf outings have netted in excess of $1 million to date. Terry AnCel, president/CEO of Hayes Mechanical since 2005, is a member of the foundation’s board of directors. He also serves as Trustee of the International Pension Fund for the Boilermakers in Kansas City, Missouri. Terry’s daughter, Christine, is the inspiration behind his passionate commitment to Ds cognition research.