LuMind Research Down Syndrome Foundation Appoints James Hendrix, Ph.D. as Chief Scientific Officer

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BURLINGTON, Mass. November 1, 2018 – LuMind™ Research Down Syndrome Foundation (LuMind RDS), a non-profit aimed at improving health and independence through high-impact research, today announced the appointment of James Hendrix, Ph.D., as chief scientific officer (CSO). Dr. Hendrix brings more than two decades of industry and non-profit experience in the life sciences, with a …

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LuMind Research Down Syndrome Foundation Launches the Down Syndrome Clinical Trials Network

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BURLINGTON, Mass.  [November 1], 2018 – With a combined $3M commitment from the Alana Foundation and biopharmaceutical companies H. Lundbeck A/S and AC Immune SA, the LuMind Research Down Syndrome Foundation (LuMind RDS) is launching the Down Syndrome Clinical Trial Network (DS-CTN) across several sites in the United States. LuMind RDS issued awards to the …

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Published results on the Roche Clinical Trials for CLEMATIS expected in the first half of 2019

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Official LuMind RDS Announcement Many of you have asked LuMind RDS about the publishing of the results of the Hoffman-La Roche (Roche) trials that took place from 2011 to 2016 with their GABA-A targeting molecule basmisanil (RG1662) tested for improving cognition in people with Down syndrome. As you may know, Roche first conducted a small 35-person Phase …

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New Trans-NIH INCLUDE Project for Down Syndrome will provide up to $261M Over 5 Years For Targeted Research, Deeper Understanding and Clinical Trials Support

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MARLBOROUGH, MA. (June 22, 2018) — On Friday, June 21, The National Institute of Health (NIH) unveiled the details of the new trans-NIH initiative devoted to individuals with Down syndrome: the INCLUDE Project (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE). INCLUDE will focus on improving the health and well-being and learn …

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Historic ~65% increase for NIH Down syndrome research

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Marlborough MA, May 27, 2017 — On Thursday this week, Congress’ House Labor and Health and Human Services Appropriations Subcommittee Chairman Tom Cole’s (R-OK) announced a historic and major increase to Down syndrome research funding at the National Institutes of Health (NIH) from $35 million in FY2017 to ~$58 million in FY2018. We are deeply …

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