Jul
14
Sat
2018 Napa to Sonoma Wine Country Half Marathon @ Cuvaison Carneros Winery
Jul 14 all-day
2018 Napa to Sonoma Wine Country Half Marathon @ Cuvaison Carneros Winery | Napa | California | United States

We saved you a spot in the SOLD OUT Napa to Sonoma Wine Country Half Marathon on July 14.

Run the Napa to Sonoma Wine Country Half Marathon for FREE with LuMind RDS Runners!

Registration for the Napa to Sonoma Wine Country Half Marathon sold out!  Missed out? No problem – we’ve saved you a spot.

Click here to learn more about Napa to Sonoma

Aug
4
Sat
Bags 4 Breakthroughs @ Scarlet Lane Brewing Company
Aug 4 @ 5:00 pm – 9:00 pm

The LuMind Research Down Syndrome Foundation and The Bags 4 Breakthroughs Committee invite you to kick off the first Bags for BREAKTHROUGHS Cornhole Tournament.

August 4th Doors Open at 4pm

Scarlet Lane Brewing Company

McCordsville, IN

Team Registration and Sponsorship Info:

http://events.lumindrds.org/B4B

We’ll start with a round robin at 5 pm then play for prizes in winner/loser brackets. Both amateur/casual and pro/expert players are welcome.
 Food and beverages will be available for purchase.  Scarlet Lane Brewing will donate a portion of there proceeds that day to LuMindRDS.
Don’t have to throw the bags to join in on the food, beer and music.  Come down and cheer on the teams and enter in to win one of our spectacular items!!!

You will be missing out but if you have made other summer plans you can still participate by DONATING. Just click here to help fund research for individuals with Down syndrome

Aug
9
Thu
Research and Retreat Weekend 2018 @ Cincinnati Great Wolf Lodge
Aug 9 – Aug 12 all-day

Research and Retreat Weekend 2018

One weekend, one location, lots of families, activities, learning and fun– all the weekend of

August 9-12, 2018 at the Cincinnati Great Wolf Lodge!

IMDSA’s Research & Retreat is teaming up with the International Down Syndrome Coalition (IDSC) Family Weekend at the Cincinnati Great Wolf Lodge in Ohio. IMDSA and IDSC’s annual events are combining into one fabulous weekend!

Join LuMind RDS’ President and CEO, Hampus Hillerstom, on Saturday 8/11 at noon for his presentation, “On The Verge Of Breakthroughs”.

 For more information, visit https://www.imdsa.org/research-and-retreat

Sep
20
Thu
Funding Futures New York @ City Winery
Sep 20 @ 6:00 pm – 9:00 pm

This past January, the sixth annual Funding Futures Chicago (FFC) event raised over $145,000 for LuMind™ Research Down Syndrome Foundation (LuMind RDS) to fund Down syndrome research. Funding Futures began in 2012 when a group of dedicated families in the Chicagoland area decided to host a fundraising event for LuMind RDS (then DSRTF) with live music, food, drinks and a silent auction. Since the first event, FFC has raised over $700,000 for LuMind RDS, and continues to grow. On September 20, Funding Futures New York (FFNY) will make its debut at City Winery in New York City.

“We are excited to bring this event to another city,” says Margie Doyle, Director of Development at LuMind RDS and co-founder of FFC. “Over the last six years, we’ve created a community in Chicago that supports and propels the advancement of Down syndrome research, and we look forward to doing the same in New York.”

The September event will be organized by a new committee established in New York City, comprised of parents, friends and family of children with Down syndrome and LuMind RDS supporters. The committee members include Genevieve Shaw Brown, Rachel Adams, Joan O’Neil Ipsen, Austin Gordon, Joey Orfini, James Orfini and Katie Peraino.

Proceeds from the Funding Futures events support research projects funded by LuMind RDS to prevent Alzheimer’s onset, improve cognition, develop gene therapy and advance understanding. Since 2004, the Foundation has provided $17 million in grants to fund research for individuals with Down syndrome at top institutions including University of California San Diego, Stanford University, University of Arizona, Johns Hopkins, Emory, MIT, and UCONN Health.

For more information on Funding Futures, or if you are interested in joining the Chicago or New York committee, please visit www.fundingfutures.us.

Jan
19
Sat
Funding Futures Chicago 2019 @ Fitzgerald's
Jan 19 @ 7:00 pm – 11:30 pm

7th Annual Funding Futures Chicago!

Save the date and mark your calendar for Saturday, January 19th, 2019 from 7-midnight.

We are going to light up the night at Fitzgerald’s in our continued support of cognition research dedicated to improve learning, provide greater independence and prevent the onset of early Alzheimer’s disease for people with Down syndrome. Tickets available soon at www.fundingfutures.us

SILENT AUCTION – LIVE MUSIC – GOOSE ISLAND CRAFT BEERS – FABULOUS FOOD, WINE & SPIRIT

Feb
17
Sun
2019 Austin Marathon, Half and 5K @ Downtown
Feb 17 all-day

Join our Austin Half Marathon Team as we hit the pavement to raise money for Down syndrome research!!! Take on the streets of this great city in one of the best half marathons in the US.  Make your miles count with and chance to run free AND make a difference in the lives of people with Down Syndrome.

February 17th, 2019.  For more information visit our Austin Half Marathon Information Page.

 

Feb
24
Sun
2019 Disney Princesses Half Marathon @ Walt Disney World Resort
Feb 24 all-day

You’re invited to join us for the most magical race weekend on Earth at Walt Disney World® Resort where your favorite classic Disney characters are the hosts! With race distances for all skill levels, including Kids Races, a 5K, 10K, Half Marathon and Marathon, participants will enjoy special Disney entertainment on course and earn one-of-a-kind Disney finisher medals. Plus, runners can take on race challenges to earn even more bling. Whether you’re a beginner or a veteran runner, everyone can experience the magic of running through Walt Disney World® Resort!

Mar
1
Fri
7th Annual Night of Art & Blues for LuMind RDS @ The Brick
Mar 1 @ 8:00 pm – 11:00 pm

The Brick @ 1145 Northside Blvd, South Bend
8:00 pm — March 1, 2019

It is going to be a great night, with over 250 people, an open bar, lots of great food, live blues band.

Tickets start at $50pp.  For more information and to purchase tickets to the Arts & Blues event please go to www.artnblues.com.

 

 

 

 

Mar
7
Thu
Webinar: Implant for Severe Sleep Apnea: Where are we now?
Mar 7 @ 4:00 pm – 5:00 pm

Webinar: Implant for Severe Sleep Apnea: Where are we now?

 

Join us for a free live webinar on Thursday, March 7 @4pm EST.

Find out more about hypoglossal stimulation and how it can be used to treat sleep apnea. The implant is currently FDA-approved in adults, but the clinical study led by Dr. Hartnick is focused on expanding access for children. Dr. Hartnick will also share a hypothesis with very preliminary data on how this might help with speech.

To register, visit http://bit.ly/SleepApneaAdvances

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Mar
17
Sun
2019 New York City Half Marathon
Mar 17 all-day

Team LuMindRDS Runners as we run one the streets of NYC on March 17th!  If you would like to be a part of our 2019 team email RunforDs@lumindrds.org

Click here to learn more about United Airlines NYC Half Marathon 

   Angela Amick - post race Matt Amick - post race Stephanie Mallick