May
31
Thu
Webinar: A New Era For Alzheimer’s Biomarkers In Down Syndrome @ Webinar
May 31 @ 12:00 pm – 1:00 pm

Watch this live webinar for perspectives on Alzheimer’s Disease biomarkers in Down syndrome from leading experts, Dr. André Strydom and Dr. Juan Fortea, with the Londowns Consortium and the Down Alzheimer Barcelona Neuroimaging Initiative.

May 31, 2018
12pm EST
Register at http://bit.ly/AlzBiomarkers4Ds

 

Dr. André Strydom (MRCPsych, MSc, PhD)
King’s College LondonDr. Strydom is a Professor in Intellectual Disabilities at the world-leading Institute of Psychiatry, Psychology and Neuroscience at King’s College London, where his research is focused on mental disorders in adults with neurodevelopmental conditions, including Down syndrome and other genetic disorders.Professor Strydom is particularly interested in ageing-related conditions such as dementia in adults with Intellectual Disability and Down syndrome. He is the chief investigator of the LonDownS consortium http://www.ucl.ac.uk/london-down-syndrome-consortium which consists of several research groups from prominent London universities (KCL, UCL, QMUoL, Birkbeck and the Crick Institute) working on various aspects of Alzheimer’s disease in Down syndrome. One of the important aims of the consortium is to deliver the knowledge, tools and expertise that is necessary to enable clinical trials of treatment to prevent or delay the onset of dementia in individuals with Down syndrome.
Dr. Juan Fortea, Faculty Neurologist.
Hospital de la Santa Creu I Sant Pau and Fundació Catalana Síndrome de Down.Dr. Fortea has extensive experience in clinical practice and in medical research, whose focus is the early diagnosis of neurodegenerative diseases, particularly Alzheimer’s disease as well as its development in Down syndrome.Dr. Fortea’s PhD specialization was the study of pre-­‐clinical Alzheimer disease in sporadic and familial cohorts through the use of multimodal MRI and CSF studies. Today, he is the principal investigator of multiple research projects in the field of Alzheimer’s disease and Down syndrome, and he leads the Neuroimaging Laboratory within the St Pau Memory Unit. One of his most significant contributions is the creation and implementation of a health plan for the screening of Alzheimer’s disease in adults with Down syndrome that includes longitudinal assessments and a comprehensive biomarker research program. This cohort is one of the largest in the world complete with multimodal biomarkers, including MRI and PET imaging, plasma and CSF as well as polysomnography tests.
Jun
26
Tue
Webinar: Pathways to Novel Cognition Targets with Potential to Help People w/ Ds
Jun 26 @ 3:00 pm – 4:00 pm

Watch this live webinar on Pathways to Novel Cognition Targets with Potential to Help People with Down Syndrome with Dr. Craig Heller, PhD, Stanford

June 26, 2018

3pm EST

Register at http://bit.ly/DsResearchFromStanfordU

The ability to learn and remember is an important aspect of human life that is more difficult for individuals with Down Syndrome. Basic research, however, is leading to new approaches that have the promise of improving impaired cognitive functions. Some of these leads involve understanding the roles that sleep and daily rhythms play in our ability to form long-term memories. Other leads involve understanding and altering the neurochemical pathways involved in memory processing. Still other leads come from molecular knowledge of how genes triplicated in DS influence brain development. In his Webinar, Dr. Heller will discuss recent progress in these areas.

Aug
9
Thu
Research and Retreat Weekend 2018 @ Cincinnati Great Wolf Lodge
Aug 9 – Aug 12 all-day

Research and Retreat Weekend 2018

One weekend, one location, lots of families, activities, learning and fun– all the weekend of

August 9-12, 2018 at the Cincinnati Great Wolf Lodge!

IMDSA’s Research & Retreat is teaming up with the International Down Syndrome Coalition (IDSC) Family Weekend at the Cincinnati Great Wolf Lodge in Ohio. IMDSA and IDSC’s annual events are combining into one fabulous weekend!

Join LuMind RDS’ President and CEO, Hampus Hillerstom, on Saturday 8/11 at noon for his presentation, “On The Verge Of Breakthroughs”.

 For more information, visit https://www.imdsa.org/research-and-retreat

Aug
30
Thu
Webinar: Parental Perspectives on Down Syndrome Research and 5 Ways to Rally for Research
Aug 30 @ 2:00 pm – 3:00 pm

Watch this live webinar on Parental Perspectives on Down Syndrome Research and 5 Ways to Rally for Research with Nicole White, PhD Candidate, Antioch University

August 30, 2018

2pm EST

Register at http://bit.ly/DsFamilySurvey 

 

More than 200 parents shared their attitudes, knowledge, priorities and perspectives on Down syndrome research. Learn how they align to the current Down syndrome research and what we need to do to work together to get results.
Oct
13
Sat
Down Syndrome Association of Connecticut Annual Convention @ Sheraton Hotel Hartford South
Oct 13 all-day
DSAC

Join LuMindRDS at the 33nd DSAC Convention on October 13th at the Sheraton Hotel Hartford South

Hampus Hillerstrom, President and CEO of LuMindRDS will be presenting “On the Verge of Research Breakthroughs”: Why We Should Be Excited & Rally Now. Our community, the public and the pharmaceutical industry once thought that therapies to improve health and independence in all ages with Down syndrome (Ds) are too complex. Learn about the recent scientific breakthroughs that challenge this thinking.

  • Alzheimer’s therapies can soon be tested in people with Ds
  • Silencing genes of concern is closer to becoming reality
  • Digital medicine approaches may be prescribed to improve neurocircuitry
  • Anti-inflammatory approaches may benefit Ds
  • Other breakthroughs are ready for rigorous development

 

Stop by our booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.

To find out more information about the conference, go to the DSAC website at mydsact.org  Our thanks to DSAC for inviting LuMindRDS and for the conference committee for their exceptional work organizing this conference.