LuMind RDS is proud to be a Bronze sponsor of the 2018 DSAIA Conference. We are looking forward to reuniting with our Down syndrome affiliates on February 23rd in Denver to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome. Swing by the LuMindRDS Booth located at Booth 8 & 9 to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.
To register or find out more information about the conference go to the DSAIA website. Our thanks to DSAIA and the conference committee for their exceptional work organizing this important meeting.
Dr. Tarik Haydar and Dr. Nadine Aziz
from the Boston University School of Medicine
Tuesday, March 20, 2018
3 p.m. EDT | 2 p.m. CDT | 12 p.m. MDT | 12 p.m. PDT
Join LuMind RDS with Dr. Tarik Haydar and Dr. Nadine Aziz to learn more about what is going on in the brain’s white matter, how it affects speed, signaling and processing in the brain. You will hear the results of recent research that demonstrates it matters in Down syndrome and may be a potential target to improve the brain circuitry that affect the speed and rate of processing information.
Dr. Tarik Haydar and Dr. Nadine Aziz will provide the background of white matter, the differences found with Down syndrome and present their research path and methodology followed by a Questions and Answers session.
If you can’t join us, register today and receive a link to the recording after the live webinar!
Join us to learn what is going on in your white matter, how it affects speed, signaling and processing in the brain, and the results of recent research that demonstrates it matters in Down syndrome and may be a potential target to improve the brain circuitry that affect the speed and rate of processing information. Dr. Tarik Haydar and Dr. Nadine Aziz will provide the background of white matter, the differences found with Down syndrome and present their research path and methodology followed by a Questions and Answers session.
About Dr. Tarik Haydar:
For the past 20 years, Dr. Haydar has dedicated himself to advancing our understanding of Down syndrome. As a PhD student at the University of Maryland, he worked with Dr. Bruce Krueger on brain development in the Ts16 mouse, the first mouse model of Down syndrome in 1997. He then completed a postdoctoral fellowship on cellular/molecular mechanisms of brain development at Yale University, working with Dr. Pasko Rakic.
Dr. Haydar returned to Down syndrome research in 2002 when he established an independent laboratory at the Children’s National Medical Center in Washington DC. Studying brain development of the Ts65Dn mouse model of Down syndrome, he determined that two triplicated genes (Olig1 and Olig2) may play a role in changing the balance of excitation and inhibition in the brains of people with Down syndrome. In 2010, Dr. Haydar moved to Boston University, where he is currently investigating the causes of changes in white matter production in the central nervous system in Down syndrome.
About Dr. Nadine Aziz:
Dr. Aziz is a postdoctoral associate at Boston University School of Medicine working in Dr. Haydar’s lab. She is interested in characterizing the determinants of proper central nervous system development and function during gestation. Specifically, She studies the etiology of atypical central nervous system development and its impact on cognition and motor function in Down syndrome. She is involved in multiple interrelated projects utilizing mouse models of Down syndrome.
Dr. Haydar’s research is funded by the NIH (NINDS and NICHD).
Stay tuned for more information about MDSC’s 2019 Annual Conference!!
LuMind RDS is proud to be a sponsor of the 2018 MDSC Adult Conference. We are looking forward to reuniting with our Down syndrome affiliates on April 28th in Waltham, MA to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome. Swing by the LuMindRDS Booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.
To find out more information go to www.mdsc.org. Hope to see you there!!!
Obstructive Sleep Apnea: Don’t let it get in the way of cognitive potential!
Live webinar with Dr. Brian Skotko from the Mass General Hospital Down Syndrome Program and Dr. Christopher Hartnick from Mass Eye and Ear
Wednesday, April 25, 2018
Don’t let obstructive sleep apnea (OSA) get in the way of cognitive potential! OSA occurs in nearly 3 out of every 4 people with Down syndrome. Symptoms are often silent, with no warning to caregivers and clinicians. Untreated sleep apnea may result in worsening medical issues and loss of cognitive functioning. Register now at http://bit.ly/321Sleep for this live webinar on April 25th to learn about the latest ways to detect apnea in persons with Down syndrome and new advances in how to treat obstructive sleep apnea led by Dr. Brian.Skotko from MGHDownSyndrome and Dr. Christopher Hartnick from MassEyeAndEar. A webinar not to be missed for every parent or caregiver!
Watch this live webinar for perspectives on Alzheimer’s Disease biomarkers in Down syndrome from leading experts, Dr. André Strydom and Dr. Juan Fortea, with the Londowns Consortium and the Down Alzheimer Barcelona Neuroimaging Initiative.
May 31, 2018
Register at http://bit.ly/AlzBiomarkers4Ds
|Dr. André Strydom (MRCPsych, MSc, PhD)
King’s College LondonDr. Strydom is a Professor in Intellectual Disabilities at the world-leading Institute of Psychiatry, Psychology and Neuroscience at King’s College London, where his research is focused on mental disorders in adults with neurodevelopmental conditions, including Down syndrome and other genetic disorders.Professor Strydom is particularly interested in ageing-related conditions such as dementia in adults with Intellectual Disability and Down syndrome. He is the chief investigator of the LonDownS consortium http://www.ucl.ac.uk/london-down-syndrome-consortium which consists of several research groups from prominent London universities (KCL, UCL, QMUoL, Birkbeck and the Crick Institute) working on various aspects of Alzheimer’s disease in Down syndrome. One of the important aims of the consortium is to deliver the knowledge, tools and expertise that is necessary to enable clinical trials of treatment to prevent or delay the onset of dementia in individuals with Down syndrome.
|Dr. Juan Fortea, Faculty Neurologist.
Hospital de la Santa Creu I Sant Pau and Fundació Catalana Síndrome de Down.Dr. Fortea has extensive experience in clinical practice and in medical research, whose focus is the early diagnosis of neurodegenerative diseases, particularly Alzheimer’s disease as well as its development in Down syndrome.Dr. Fortea’s PhD specialization was the study of pre-‐clinical Alzheimer disease in sporadic and familial cohorts through the use of multimodal MRI and CSF studies. Today, he is the principal investigator of multiple research projects in the field of Alzheimer’s disease and Down syndrome, and he leads the Neuroimaging Laboratory within the St Pau Memory Unit. One of his most significant contributions is the creation and implementation of a health plan for the screening of Alzheimer’s disease in adults with Down syndrome that includes longitudinal assessments and a comprehensive biomarker research program. This cohort is one of the largest in the world complete with multimodal biomarkers, including MRI and PET imaging, plasma and CSF as well as polysomnography tests.
Watch this live webinar on Pathways to Novel Cognition Targets with Potential to Help People with Down Syndrome with Dr. Craig Heller, PhD, Stanford
June 26, 2018
Register at http://bit.ly/DsResearchFromStanfordU
The ability to learn and remember is an important aspect of human life that is more difficult for individuals with Down Syndrome. Basic research, however, is leading to new approaches that have the promise of improving impaired cognitive functions. Some of these leads involve understanding the roles that sleep and daily rhythms play in our ability to form long-term memories. Other leads involve understanding and altering the neurochemical pathways involved in memory processing. Still other leads come from molecular knowledge of how genes triplicated in DS influence brain development. In his Webinar, Dr. Heller will discuss recent progress in these areas.
Research and Retreat Weekend 2018
One weekend, one location, lots of families, activities, learning and fun– all the weekend of
August 9-12, 2018 at the Cincinnati Great Wolf Lodge!
Watch this live webinar on Parental Perspectives on Down Syndrome Research and 5 Ways to Rally for Research with Nicole White, PhD Candidate, Antioch University
August 30, 2018
Register at http://bit.ly/DsFamilySurvey
Regression: Understanding a sudden loss of skills in children or young adults with Down syndrome.
September 18, 2018
Registration link: http://bit.ly/RegressionAndDs
Regression is an unusual loss of previously acquired functional skills along with significant changes in behavior and personality. When it occurs, it most commonly occurs in teens and young adults but may occur in younger and older ages. Learn more about the known signs, causes or triggers and current research from two leading clinical experts, Drs. George Capone and Brian Chicoine, with over 20 years of experience providing medical care for children and adults with Down syndrome.
Dr. Capone shares the knowledge he has gained at the Kennedy Krieger Institute evaluating children who experience a dramatic loss (or plateauing) in their acquisition and use of language and social-attending skills. He will discuss when these changes could be signs of a co-existing autism disorder or other behavioral or psychiatric conditions such as ADHD, OCD or mood disorder.
Based on his extensive knowledge and many years of practical experience, Dr. Chicoine will discuss the evaluation of sudden functional changes in younger adults with Down syndrome in the context of regression and Alzheimer’s and suggest ways to thoughtfully approach these changes.
George T. Capone, M.D.
Dr. George Capone is an associate professor of pediatrics at the Johns Hopkins University School of Medicine. Dr. Capone is committed to research that explores the neurobiologic basis of cognitive impairment and co-morbid neurobehavioral and psychiatric disorders associated with Down syndrome.
He is also a research scientist and director of the Down Syndrome Clinic and Research Center (DSCRC) at Kennedy Krieger Institute, as well as an attending physician on the institute’s comprehensive rehabilitation unit.
Brian Chicoine, M.D.
Dr. Chicoine is the Medical Director of the Advocate Adult Down Syndrome Center in Park Ridge, IL. He is on the faculty of Family Medicine at Advocate Lutheran General Hospital. Dr. Chicoine is the cofounder of the Adult Down Syndrome Center that has served and documented the health and psychosocial needs of over 6000 adolescents and adults with Down syndrome since its inception in 1992.