Feb
16
Fri
Florida Down Syndrome Conference 2018 @ Nemours Children's Hospital
Feb 16 – Feb 17 all-day

Down Syndrome Association of Central Florida is hosting the 11th Annual Florida Down Syndrome Conference at Nemours Children’s Hospital.

Keynote Speaker: Dr. William Mobley, PhD from University of California San Diego.

 

To register or for more information please go to www.DSACF.org

Feb
28
Wed
Down Syndrome Affiliates In Action (DSAIA) 2019 Conference @ Hyatt Regency St. Louis at the Arch
Feb 28 – Mar 3 all-day

 

LuMind RDS is proud to be a Bronze sponsor of the 2019 DSAIA Conference. We are looking forward to reuniting with our Down syndrome affiliates on February 28th in St.Louis to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome.   Swing by the LuMindRDS Booth located at Booth 9&10 to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.

To register or find out more information about the conference go to the DSAIA website. Our thanks to DSAIA and the conference committee for their exceptional work organizing this important meeting.

Apr
10
Tue
MDSC Adult Conference 2018 @ Bentley University
Apr 10 all-day

 

LuMind RDS is proud to be a sponsor of the 2018 MDSC Adult Conference. We are looking forward to reuniting with our Down syndrome affiliates on April 28th in Waltham, MA to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome.   Swing by the LuMindRDS Booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.

To find out more information go to www.mdsc.org.  Hope to see you there!!!

Jul
14
Sat
2018 Napa to Sonoma Wine Country Half Marathon @ Cuvaison Carneros Winery
Jul 14 all-day
2018 Napa to Sonoma Wine Country Half Marathon @ Cuvaison Carneros Winery | Napa | California | United States

We saved you a spot in the SOLD OUT Napa to Sonoma Wine Country Half Marathon on July 14.

Run the Napa to Sonoma Wine Country Half Marathon for FREE with LuMind RDS Runners!

Registration for the Napa to Sonoma Wine Country Half Marathon sold out!  Missed out? No problem – we’ve saved you a spot.

Click here to learn more about Napa to Sonoma

Aug
9
Thu
Research and Retreat Weekend 2018 @ Cincinnati Great Wolf Lodge
Aug 9 – Aug 12 all-day

Research and Retreat Weekend 2018

One weekend, one location, lots of families, activities, learning and fun– all the weekend of

August 9-12, 2018 at the Cincinnati Great Wolf Lodge!

IMDSA’s Research & Retreat is teaming up with the International Down Syndrome Coalition (IDSC) Family Weekend at the Cincinnati Great Wolf Lodge in Ohio. IMDSA and IDSC’s annual events are combining into one fabulous weekend!

Join LuMind RDS’ President and CEO, Hampus Hillerstom, on Saturday 8/11 at noon for his presentation, “On The Verge Of Breakthroughs”.

 For more information, visit https://www.imdsa.org/research-and-retreat

Feb
17
Sun
2019 Austin Marathon, Half and 5K @ Downtown
Feb 17 all-day

Join our Austin Half Marathon Team as we hit the pavement to raise money for Down syndrome research!!! Take on the streets of this great city in one of the best half marathons in the US.  Make your miles count with and chance to run free AND make a difference in the lives of people with Down Syndrome.

February 17th, 2019.  For more information visit our Austin Half Marathon Information Page.

 

Feb
24
Sun
2019 Disney Princesses Half Marathon @ Walt Disney World Resort
Feb 24 all-day

You’re invited to join us for the most magical race weekend on Earth at Walt Disney World® Resort where your favorite classic Disney characters are the hosts! With race distances for all skill levels, including Kids Races, a 5K, 10K, Half Marathon and Marathon, participants will enjoy special Disney entertainment on course and earn one-of-a-kind Disney finisher medals. Plus, runners can take on race challenges to earn even more bling. Whether you’re a beginner or a veteran runner, everyone can experience the magic of running through Walt Disney World® Resort!

Mar
17
Sun
2019 New York City Half Marathon
Mar 17 all-day

Team LuMindRDS Runners as we run one the streets of NYC on March 17th!  If you would like to be a part of our 2019 team email RunforDs@lumindrds.org

Click here to learn more about United Airlines NYC Half Marathon 

   Angela Amick - post race Matt Amick - post race Stephanie Mallick

Mar
20
Wed
The Up of Down: An Insight Into the World of Down Syndrome @ NYU Winthrop Research & Academic Conference Center
Mar 20 @ 1:30 pm

You’re invited to the Conference on the

Progress of Down Syndrome Research

Wednesday, March 20, 2019

We invite you to attend this great research symposium on March 20 @ 1:30pm in Mineola, New York organized by our friends at Alexander’s Angels featuring great research that has been supported by LuMind RDS. It’s a great opportunity to hear about progress in Down syndrome research directly from the researchers. The symposium is open to families and healthcare providers. Space is limited so you can reserve your spot today online at winthrop.cloud-cme.com.

The Up of Down: An Insight into the World of Down Syndrome is a Joint Provider Conference with Alexander’s Angels, Inc. and NYU Winthrop Hospital. The focus is to highlight the Down syndrome research progress and consists of speakers from a broad spectrum of specialties. Current findings will be presented by faculty from prestigious universities with affiliated hospitals on their campus. The conference will cover a wide range of topics including plans to explore a broad number of topics related to Down syndrome.

Keynote Speaker

  Roger Reeves, PhD.

Rethinking Alzheimer Disease in the Context of Down Syndrome

William Mobley, MD, PhD

Gene Dosage in Cellular Models of Trisomy 21

Stefan Pinter, PhD

Review the FDA Approved Study Looking at the Effect of Hypoglossal Nerve Stimulation in Treating Children Ages 10 to 21 with Down Syndrome and Significant Obstructive Sleep Apnea (OSA)

Christopher Hartnick, MD, MS

Learning Objectives

At the end of this symposium, learners should be able to:

• Discuss improvements in learning and memory in individuals with Down syndrome

• Assess and discuss why we see early onset Alzheimer’s in individuals with Down syndrome

• Explain research findings regarding cellular models

• Discuss common developmental and behavioral observations of individuals with Down syndrome

• Identify medical predispositions in individuals with Down syndrome

• Benefits of Hypoglossal Nerve Stimulation

• Discuss the effects of Down syndrome on the immune system

 

Please register at winthrop.cloud-cme.com

SPACE IS LIMITED. REGISTER EARLY.
NYU Winthrop Research & Academic Conference Center

Main Level

101 Mineola Boulevard

Mineola, NY 11501

Registration is FREE and includes educational materials, refreshments and CME-CE credit certificate.

Mar
21
Thu
WDSD – Virtual Run/Walk
Mar 21 all-day

WDSD V RW Banner 2016

Join the WDSD 321 Virtual Run/Walk – Actively Support Ds Research

World Down Syndrome Day (3/21) and, here at LuMind Research Down Syndrome, we’re wondering how YOU plan to celebrate.

Won’t you join us in *actively* showing your support of Down syndrome cognition research by signing up to participate in the World Down Syndrome Day 321 Virtual Run/Walk event?  This “virtual” event is an opportunity for people across the world to come together to advocate and self-advocate for persons with Down syndrome. We have a goal to unite a team of supporters across the world in raising funds for Down syndrome research by team fundraising throughout the month of March 2019.

To participate, we ask that you commit to taking part in some kind of physical activity throughout the month of March involving any sort of variation of the numbers 3-2-1.  Then on WDSD (3/21) post pictures, or video, of your 3-2-1 activity on our Facebook Group.  Participate on your own, or rally a team to help you participate and fundraise.  After registering, we encourage you to set up your fundraising page and ask friends and family for their support.  We have some great fundraising prizes for this year’s teams

Anyone who registers for the event will receive a cotton t-shirt and a medal, but only those registrations received before March 1 are guaranteed receipt of their shirt by March 21, 2019.

Some ideas:

  • Commit to walking or running 3.21 miles
  • Swim 321 laps in the pool
  • Hop on the elliptical or Stairmaster for 32.1 minutes

Don’t be afraid to get creative! We’ve had participants send us their photos of going for a run along Route 321 or commit to running 3.21 miles EVERY day throughout the month of March!

Whatever activity you decide to do from lacing up your running shoes, snap on your helmet, or dive in as part of the World Down Syndrome Day 321 Virtual Run/Walk and support cognition research!

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