Down Syndrome Association of Central Florida is hosting the 11th Annual Florida Down Syndrome Conference at Nemours Children’s Hospital.
Keynote Speaker: Dr. William Mobley, PhD from University of California San Diego.
To register or for more information please go to www.DSACF.org
LuMind RDS is proud to be a Bronze sponsor of the 2019 DSAIA Conference. We are looking forward to reuniting with our Down syndrome affiliates on February 28th in St.Louis to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome. Swing by the LuMindRDS Booth located at Booth 9&10 to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.
To register or find out more information about the conference go to the DSAIA website. Our thanks to DSAIA and the conference committee for their exceptional work organizing this important meeting.
Dr. Tarik Haydar and Dr. Nadine Aziz
from the Boston University School of Medicine
Tuesday, March 20, 2018
3 p.m. EDT | 2 p.m. CDT | 12 p.m. MDT | 12 p.m. PDT
Join LuMind RDS with Dr. Tarik Haydar and Dr. Nadine Aziz to learn more about what is going on in the brain’s white matter, how it affects speed, signaling and processing in the brain. You will hear the results of recent research that demonstrates it matters in Down syndrome and may be a potential target to improve the brain circuitry that affect the speed and rate of processing information.
Dr. Tarik Haydar and Dr. Nadine Aziz will provide the background of white matter, the differences found with Down syndrome and present their research path and methodology followed by a Questions and Answers session.
If you can’t join us, register today and receive a link to the recording after the live webinar!
Join us to learn what is going on in your white matter, how it affects speed, signaling and processing in the brain, and the results of recent research that demonstrates it matters in Down syndrome and may be a potential target to improve the brain circuitry that affect the speed and rate of processing information. Dr. Tarik Haydar and Dr. Nadine Aziz will provide the background of white matter, the differences found with Down syndrome and present their research path and methodology followed by a Questions and Answers session.
About Dr. Tarik Haydar:
For the past 20 years, Dr. Haydar has dedicated himself to advancing our understanding of Down syndrome. As a PhD student at the University of Maryland, he worked with Dr. Bruce Krueger on brain development in the Ts16 mouse, the first mouse model of Down syndrome in 1997. He then completed a postdoctoral fellowship on cellular/molecular mechanisms of brain development at Yale University, working with Dr. Pasko Rakic.
Dr. Haydar returned to Down syndrome research in 2002 when he established an independent laboratory at the Children’s National Medical Center in Washington DC. Studying brain development of the Ts65Dn mouse model of Down syndrome, he determined that two triplicated genes (Olig1 and Olig2) may play a role in changing the balance of excitation and inhibition in the brains of people with Down syndrome. In 2010, Dr. Haydar moved to Boston University, where he is currently investigating the causes of changes in white matter production in the central nervous system in Down syndrome.
About Dr. Nadine Aziz:
Dr. Aziz is a postdoctoral associate at Boston University School of Medicine working in Dr. Haydar’s lab. She is interested in characterizing the determinants of proper central nervous system development and function during gestation. Specifically, She studies the etiology of atypical central nervous system development and its impact on cognition and motor function in Down syndrome. She is involved in multiple interrelated projects utilizing mouse models of Down syndrome.
Dr. Haydar’s research is funded by the NIH (NINDS and NICHD).
LuMind RDS is proud to be a sponsor of the 2018 MDSC Adult Conference. We are looking forward to reuniting with our Down syndrome affiliates on April 28th in Waltham, MA to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome. Swing by the LuMindRDS Booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.
To find out more information go to www.mdsc.org. Hope to see you there!!!
Obstructive Sleep Apnea: Don’t let it get in the way of cognitive potential!
Live webinar with Dr. Brian Skotko from the Mass General Hospital Down Syndrome Program and Dr. Christopher Hartnick from Mass Eye and Ear
Wednesday, April 25, 2018
Don’t let obstructive sleep apnea (OSA) get in the way of cognitive potential! OSA occurs in nearly 3 out of every 4 people with Down syndrome. Symptoms are often silent, with no warning to caregivers and clinicians. Untreated sleep apnea may result in worsening medical issues and loss of cognitive functioning. Register now at http://bit.ly/321Sleep for this live webinar on April 25th to learn about the latest ways to detect apnea in persons with Down syndrome and new advances in how to treat obstructive sleep apnea led by Dr. Brian.Skotko from MGHDownSyndrome and Dr. Christopher Hartnick from MassEyeAndEar. A webinar not to be missed for every parent or caregiver!
Watch this live webinar for perspectives on Alzheimer’s Disease biomarkers in Down syndrome from leading experts, Dr. André Strydom and Dr. Juan Fortea, with the Londowns Consortium and the Down Alzheimer Barcelona Neuroimaging Initiative.
May 31, 2018
Register at http://bit.ly/AlzBiomarkers4Ds
|Dr. André Strydom (MRCPsych, MSc, PhD)
King’s College LondonDr. Strydom is a Professor in Intellectual Disabilities at the world-leading Institute of Psychiatry, Psychology and Neuroscience at King’s College London, where his research is focused on mental disorders in adults with neurodevelopmental conditions, including Down syndrome and other genetic disorders.Professor Strydom is particularly interested in ageing-related conditions such as dementia in adults with Intellectual Disability and Down syndrome. He is the chief investigator of the LonDownS consortium http://www.ucl.ac.uk/london-down-syndrome-consortium which consists of several research groups from prominent London universities (KCL, UCL, QMUoL, Birkbeck and the Crick Institute) working on various aspects of Alzheimer’s disease in Down syndrome. One of the important aims of the consortium is to deliver the knowledge, tools and expertise that is necessary to enable clinical trials of treatment to prevent or delay the onset of dementia in individuals with Down syndrome.
|Dr. Juan Fortea, Faculty Neurologist.
Hospital de la Santa Creu I Sant Pau and Fundació Catalana Síndrome de Down.Dr. Fortea has extensive experience in clinical practice and in medical research, whose focus is the early diagnosis of neurodegenerative diseases, particularly Alzheimer’s disease as well as its development in Down syndrome.Dr. Fortea’s PhD specialization was the study of pre-‐clinical Alzheimer disease in sporadic and familial cohorts through the use of multimodal MRI and CSF studies. Today, he is the principal investigator of multiple research projects in the field of Alzheimer’s disease and Down syndrome, and he leads the Neuroimaging Laboratory within the St Pau Memory Unit. One of his most significant contributions is the creation and implementation of a health plan for the screening of Alzheimer’s disease in adults with Down syndrome that includes longitudinal assessments and a comprehensive biomarker research program. This cohort is one of the largest in the world complete with multimodal biomarkers, including MRI and PET imaging, plasma and CSF as well as polysomnography tests.
Watch this live webinar on Pathways to Novel Cognition Targets with Potential to Help People with Down Syndrome with Dr. Craig Heller, PhD, Stanford
June 26, 2018
Register at http://bit.ly/DsResearchFromStanfordU
The ability to learn and remember is an important aspect of human life that is more difficult for individuals with Down Syndrome. Basic research, however, is leading to new approaches that have the promise of improving impaired cognitive functions. Some of these leads involve understanding the roles that sleep and daily rhythms play in our ability to form long-term memories. Other leads involve understanding and altering the neurochemical pathways involved in memory processing. Still other leads come from molecular knowledge of how genes triplicated in DS influence brain development. In his Webinar, Dr. Heller will discuss recent progress in these areas.
Research and Retreat Weekend 2018
One weekend, one location, lots of families, activities, learning and fun– all the weekend of
August 9-12, 2018 at the Cincinnati Great Wolf Lodge!
You’re invited to the Conference on the
Progress of Down Syndrome Research
Wednesday, March 20, 2019
We invite you to attend this great research symposium on March 20 @ 1:30pm in Mineola, New York organized by our friends at Alexander’s Angels featuring great research that has been supported by LuMind RDS. It’s a great opportunity to hear about progress in Down syndrome research directly from the researchers. The symposium is open to families and healthcare providers. Space is limited so you can reserve your spot today online at winthrop.cloud-cme.com.
The Up of Down: An Insight into the World of Down Syndrome is a Joint Provider Conference with Alexander’s Angels, Inc. and NYU Winthrop Hospital. The focus is to highlight the Down syndrome research progress and consists of speakers from a broad spectrum of specialties. Current findings will be presented by faculty from prestigious universities with affiliated hospitals on their campus. The conference will cover a wide range of topics including plans to explore a broad number of topics related to Down syndrome.
Roger Reeves, PhD.
Rethinking Alzheimer Disease in the Context of Down Syndrome
William Mobley, MD, PhD
Gene Dosage in Cellular Models of Trisomy 21
Stefan Pinter, PhD
Review the FDA Approved Study Looking at the Effect of Hypoglossal Nerve Stimulation in Treating Children Ages 10 to 21 with Down Syndrome and Significant Obstructive Sleep Apnea (OSA)
Christopher Hartnick, MD, MS
At the end of this symposium, learners should be able to:
• Discuss improvements in learning and memory in individuals with Down syndrome
• Assess and discuss why we see early onset Alzheimer’s in individuals with Down syndrome
• Explain research findings regarding cellular models
• Discuss common developmental and behavioral observations of individuals with Down syndrome
• Identify medical predispositions in individuals with Down syndrome
• Benefits of Hypoglossal Nerve Stimulation
• Discuss the effects of Down syndrome on the immune system
Please register at winthrop.cloud-cme.com
SPACE IS LIMITED. REGISTER EARLY.
NYU Winthrop Research & Academic Conference Center
101 Mineola Boulevard
Mineola, NY 11501
Registration is FREE and includes educational materials, refreshments and CME-CE credit certificate.
Shaping the Future: The State of Down Syndrome Research Today
The 35th Annual Conference at the DCU Center in Worcester, MA on March 23rd.
We’re proud to partner with the Massachusetts Down Syndrome Congress (MDSC) team to collaborate and sponsor their first research-focused event for families — Shaping the Future: The State of Down Syndrome Research Today.
This year, the community will gather to delve deep into the promising developments in Down syndrome research and the exciting potential it has for the future with session topics including:
→ innovative clinical trials and studies underway nationwide that have promise to make a difference in people’s lives
→ the latest research on sleep apnea, nutrition and obesity behavior, inclusive education, clinical care medical and neurodevelopmental conditions, speech and language pathology, and Alzheimer’s disease
→ information on the latest groundbreaking research into “silencing the extra chromosome.”
→ how to participate in Down syndrome-specific research studies, including the National Institute for Health’s DS Connect portal.
The offerings address the needs of people with Down syndrome from childhood through aging adult with useful information for self-advocates, siblings, grandparents, support providers, education and medical professionals, and researchers.
To learn more and take advantage of the early-bird registration rates, visit the conference website before March 11.