The LuMind Research Down Syndrome Foundation and The Bags 4 Breakthroughs Committee invite you to kick off the first Bags for BREAKTHROUGHS Cornhole Tournament.
August 4th Doors Open at 4pm
Scarlet Lane Brewing Company
Team Registration and Sponsorship Info:
|We’ll start with a round robin at 5 pm then play for prizes in winner/loser brackets. Both amateur/casual and pro/expert players are welcome.|
|Food and beverages will be available for purchase. Scarlet Lane Brewing will donate a portion of there proceeds that day to LuMindRDS.|
|Don’t have to throw the bags to join in on the food, beer and music. Come down and cheer on the teams and enter in to win one of our spectacular items!!!
You will be missing out but if you have made other summer plans you can still participate by DONATING. Just click here to help fund research for individuals with Down syndrome
Research and Retreat Weekend 2018
One weekend, one location, lots of families, activities, learning and fun– all the weekend of
August 9-12, 2018 at the Cincinnati Great Wolf Lodge!
Watch this live webinar on Parental Perspectives on Down Syndrome Research and 5 Ways to Rally for Research with Nicole White, PhD Candidate, Antioch University
August 30, 2018
Register at http://bit.ly/DsFamilySurvey
Join LuMind RDS & DSDN
and light up the night with us at the 2018 ROCKIN’ IT Run 5K.
Rockin’ It Run 5K
JW Marriott Desert Ridge Phoenix, AZ
Thursday, Sept. 6, 2018
Runners and walkers are welcome for an evening filled with glow sticks, dunk tank, auction items – and great music for a great cause. You will be joining a vibrant community of runners who are friends and family of a loved one with Down syndrome – or who just enjoy running for a great cause! For more information on sponsorship or attending this event please contact Katie Coughlin.
This past January, the sixth annual Funding Futures Chicago (FFC) event raised over $145,000 for LuMind™ Research Down Syndrome Foundation (LuMind RDS) to fund Down syndrome research. Funding Futures began in 2012 when a group of dedicated families in the Chicagoland area decided to host a fundraising event for LuMind RDS (then DSRTF) with live music, food, drinks and a silent auction. Since the first event, FFC has raised over $700,000 for LuMind RDS, and continues to grow. On September 20, Funding Futures New York (FFNY) will make its debut at City Winery in New York City.
“We are excited to bring this event to another city,” says Margie Doyle, Director of Development at LuMind RDS and co-founder of FFC. “Over the last six years, we’ve created a community in Chicago that supports and propels the advancement of Down syndrome research, and we look forward to doing the same in New York.”
The September event will be organized by a new committee established in New York City, comprised of parents, friends and family of children with Down syndrome and LuMind RDS supporters. The committee members include Genevieve Shaw Brown, Rachel Adams, Joan O’Neil Ipsen, Austin Gordon, Joey Orfini, James Orfini and Katie Peraino.
Proceeds from the Funding Futures events support research projects funded by LuMind RDS to prevent Alzheimer’s onset, improve cognition, develop gene therapy and advance understanding. Since 2004, the Foundation has provided $17 million in grants to fund research for individuals with Down syndrome at top institutions including University of California San Diego, Stanford University, University of Arizona, Johns Hopkins, Emory, MIT, and UCONN Health.
For more information on Funding Futures, or if you are interested in joining the Chicago or New York committee, please visit www.fundingfutures.us.
Team of 11 LuMind RDS Runners will take on the mean streets of Chicago in one of America’s Favorite Races!! Help our team reach their goal of raising $25,000 by donating today.
*We have filled our 2018 Team, if you would like to be on our list for 2019 email Katie Coughlin at RunforDs@lumindrds.org
Click here to learn more about Chicago Marathon
Join LuMindRDS at the 33nd DSAC Convention on October 13th at the Sheraton Hotel Hartford South
Hampus Hillerstrom, President and CEO of LuMindRDS will be presenting “On the Verge of Research Breakthroughs”: Why We Should Be Excited & Rally Now. Our community, the public and the pharmaceutical industry once thought that therapies to improve health and independence in all ages with Down syndrome (Ds) are too complex. Learn about the recent scientific breakthroughs that challenge this thinking.
- Alzheimer’s therapies can soon be tested in people with Ds
- Silencing genes of concern is closer to becoming reality
- Digital medicine approaches may be prescribed to improve neurocircuitry
- Anti-inflammatory approaches may benefit Ds
- Other breakthroughs are ready for rigorous development
Stop by our booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.
To find out more information about the conference, go to the DSAC website at mydsact.org Our thanks to DSAC for inviting LuMindRDS and for the conference committee for their exceptional work organizing this conference.
Run with us!
Join LuMind RDS Runners at the TCS New York City Marathon on November 4th, 2018!
NEW THIS YEAR! Personalized long sleeve running shirts will be provided to runners who raises $2,100 or more by October 1, 2018!
Guaranteed entry into the 2018 TCS New York City Marathon with LuMind RDS Runners will remain open until September 18, 2018. Once you register, you will be directed to set up your charity fundraising page on Applications.
Runners accepted for guaranteed entry between February 28, 2018 and September 18, 2018 are expected to raise a minimum of $3,000 in support of Down syndrome cognition research. Click here to learn more.
Click here to learn more about New York City Marathon