Jun
26
Tue
Webinar: Pathways to Novel Cognition Targets with Potential to Help People w/ Ds
Jun 26 @ 3:00 pm – 4:00 pm

Watch this live webinar on Pathways to Novel Cognition Targets with Potential to Help People with Down Syndrome with Dr. Craig Heller, PhD, Stanford

June 26, 2018

3pm EST

Register at http://bit.ly/DsResearchFromStanfordU

The ability to learn and remember is an important aspect of human life that is more difficult for individuals with Down Syndrome. Basic research, however, is leading to new approaches that have the promise of improving impaired cognitive functions. Some of these leads involve understanding the roles that sleep and daily rhythms play in our ability to form long-term memories. Other leads involve understanding and altering the neurochemical pathways involved in memory processing. Still other leads come from molecular knowledge of how genes triplicated in DS influence brain development. In his Webinar, Dr. Heller will discuss recent progress in these areas.

Jul
14
Sat
2018 Napa to Sonoma Wine Country Half Marathon @ Cuvaison Carneros Winery
Jul 14 all-day
2018 Napa to Sonoma Wine Country Half Marathon @ Cuvaison Carneros Winery | Napa | California | United States

We saved you a spot in the SOLD OUT Napa to Sonoma Wine Country Half Marathon on July 14.

Run the Napa to Sonoma Wine Country Half Marathon for FREE with LuMind RDS Runners!

Registration for the Napa to Sonoma Wine Country Half Marathon sold out!  Missed out? No problem – we’ve saved you a spot.

Click here to learn more about Napa to Sonoma

Dallas Miles For Breakthroughs @ Trinity Skyline Trail
Jul 14 @ 7:30 am – 8:30 am

Miles for Breakthroughs 5k

July 14th @7:30am

Trinity Skyline Trail

Dallas, TX

 

Join the LuMind RDS as we unite for a common cause and raise funds at the 2018 Miles for Breakthroughs 5K. You will be joining a vibrant community of runners who are friends and family of a loved one with Down syndrome – or just enjoy running for a great cause!

Make a difference. By joining LuMind RDS Runners and participating in the Miles for Breakthroughs 5K, your fundraising efforts will go directly to support results-driven research to improve health and independence in persons with Down syndrome all over the world.

Register or donate today!

Want to connect with other runners at this event and other LuMind RDS Runners events across the country? If you have a passion for staying in shape and a passion for someone with Down Syndrome, please join our facebook group!

Jul
15
Sun
National Down Syndrome Congress (NDSC) Conference 2018 @ Sheraton Dallas Hotel
Jul 15 – Jul 18 all-day

 

National Down Syndrome Congress

2018 NDSC Conference

July 12-15, 2018

Dallas, Texas

Sheraton Dallas Hotel

 

LuMind RDS is proud to be a Wrangler sponsor of the 2018 NDSC Conference. We are looking forward to reuniting with family and friends on July 12th in Dallas to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome.   Swing by the LuMindRDS Booth located at Booth 6 to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.

Come join us at Miles for Breakthroughs 5k run/walk at Trinity Skyline Trail July 14th @ 7:30am.  To register or donate Click Here

To find out more information about the conference go to the NDSC website. Our thanks to NDSC and the conference committee for their exceptional work organizing this important meeting.

Aug
4
Sat
Bags 4 Breakthroughs @ Scarlet Lane Brewing Company
Aug 4 @ 5:00 pm – 9:00 pm

The LuMind Research Down Syndrome Foundation and The Bags 4 Breakthroughs Committee invite you to kick off the first Bags for BREAKTHROUGHS Cornhole Tournament.

August 4th Doors Open at 4pm

Scarlet Lane Brewing Company

McCordsville, IN

Team Registration and Sponsorship Info:

http://events.lumindrds.org/B4B

We’ll start with a round robin at 5 pm then play for prizes in winner/loser brackets. Both amateur/casual and pro/expert players are welcome.
 Food and beverages will be available for purchase.  Scarlet Lane Brewing will donate a portion of there proceeds that day to LuMindRDS.
Don’t have to throw the bags to join in on the food, beer and music.  Come down and cheer on the teams and enter in to win one of our spectacular items!!!

You will be missing out but if you have made other summer plans you can still participate by DONATING. Just click here to help fund research for individuals with Down syndrome

Aug
9
Thu
Research and Retreat Weekend 2018 @ Cincinnati Great Wolf Lodge
Aug 9 – Aug 12 all-day

Research and Retreat Weekend 2018

One weekend, one location, lots of families, activities, learning and fun– all the weekend of

August 9-12, 2018 at the Cincinnati Great Wolf Lodge!

IMDSA’s Research & Retreat is teaming up with the International Down Syndrome Coalition (IDSC) Family Weekend at the Cincinnati Great Wolf Lodge in Ohio. IMDSA and IDSC’s annual events are combining into one fabulous weekend!

Join LuMind RDS’ President and CEO, Hampus Hillerstom, on Saturday 8/11 at noon for his presentation, “On The Verge Of Breakthroughs”.

 For more information, visit https://www.imdsa.org/research-and-retreat

Aug
30
Thu
Webinar: Parental Perspectives on Down Syndrome Research and 5 Ways to Rally for Research
Aug 30 @ 2:00 pm – 3:00 pm

Watch this live webinar on Parental Perspectives on Down Syndrome Research and 5 Ways to Rally for Research with Nicole White, PhD Candidate, Antioch University

August 30, 2018

2pm EST

Register at http://bit.ly/DsFamilySurvey 

 

More than 200 parents shared their attitudes, knowledge, priorities and perspectives on Down syndrome research. Learn how they align to the current Down syndrome research and what we need to do to work together to get results.
Sep
6
Thu
Rockin’ It Run 5K @ DSDN Conference @ JW Marriott Desert Ridge
Sep 6 @ 8:30 pm – 9:30 pm

 

Join LuMind RDS &  DSDN

and light up the night with us at the 2018 ROCKIN’ IT Run 5K.

 

Rockin’ It Run 5K
JW Marriott Desert Ridge Phoenix, AZ
Thursday, Sept. 6, 2018
8:30 pm

Runners and walkers are welcome for an evening filled with glow sticks, dunk tank, auction items – and great music for a great cause. You will be joining a vibrant community of runners who are friends and family of a loved one with Down syndrome – or who just enjoy running for a great cause!  For more information on sponsorship or attending this event please contact Katie Coughlin.

Sep
18
Tue
Regression: Understanding a sudden loss of skills in children or young adults w/ Ds w/ Drs. George Capone and Brian Chicoine
Sep 18 @ 4:00 pm – 5:00 pm

Regression: Understanding a sudden loss of skills in children or young adults with Down syndrome.

September 18, 2018

Registration linkhttp://bit.ly/RegressionAndDs

 

Description:

Regression is an unusual loss of previously acquired functional skills along with significant changes in behavior and personality. When it occurs, it most commonly occurs in teens and young adults but may occur in younger and older ages. Learn more about the known signs, causes or triggers and current research from two leading clinical experts, Drs. George Capone and Brian Chicoine, with over 20 years of experience providing medical care for children and adults with Down syndrome.

Dr. Capone shares the knowledge he has gained at the Kennedy Krieger Institute evaluating children who experience a dramatic loss (or plateauing) in their acquisition and use of language and social-attending skills. He will discuss when these changes could be signs of a co-existing autism disorder or other behavioral or psychiatric conditions such as ADHD, OCD or mood disorder.

Based on his extensive knowledge and many years of practical experience, Dr. Chicoine will discuss the evaluation of sudden functional changes in younger adults with Down syndrome in the context of regression and Alzheimer’s and suggest ways to thoughtfully approach these changes.

 

Presenters:

George T. Capone, M.D.

Dr. George Capone is an associate professor of pediatrics at the Johns Hopkins University School of Medicine. Dr. Capone is committed to research that explores the neurobiologic basis of cognitive impairment and co-morbid neurobehavioral and psychiatric disorders associated with Down syndrome.

He is also a research scientist and director of the Down Syndrome Clinic and Research Center (DSCRC) at Kennedy Krieger Institute, as well as an attending physician on the institute’s comprehensive rehabilitation unit.

 

Brian Chicoine, M.D.

Dr. Chicoine is the Medical Director of the Advocate Adult Down Syndrome Center in Park Ridge, IL. He is on the faculty of Family Medicine at Advocate Lutheran General Hospital. Dr. Chicoine is the cofounder of the Adult Down Syndrome Center that has served and documented the health and psychosocial needs of over 6000 adolescents and adults with Down syndrome since its inception in 1992.

 

Sep
20
Thu
Funding Futures New York @ City Winery
Sep 20 @ 6:00 pm – 9:00 pm

This past January, the sixth annual Funding Futures Chicago (FFC) event raised over $145,000 for LuMind™ Research Down Syndrome Foundation (LuMind RDS) to fund Down syndrome research. Funding Futures began in 2012 when a group of dedicated families in the Chicagoland area decided to host a fundraising event for LuMind RDS (then DSRTF) with live music, food, drinks and a silent auction. Since the first event, FFC has raised over $700,000 for LuMind RDS, and continues to grow. On September 20, Funding Futures New York (FFNY) will make its debut at City Winery in New York City.

“We are excited to bring this event to another city,” says Margie Doyle, Director of Development at LuMind RDS and co-founder of FFC. “Over the last six years, we’ve created a community in Chicago that supports and propels the advancement of Down syndrome research, and we look forward to doing the same in New York.”

The September event will be organized by a new committee established in New York City, comprised of parents, friends and family of children with Down syndrome and LuMind RDS supporters. The committee members include Genevieve Shaw Brown, Rachel Adams, Joan O’Neil Ipsen, Austin Gordon, Joey Orfini, James Orfini and Katie Peraino.

Proceeds from the Funding Futures events support research projects funded by LuMind RDS to prevent Alzheimer’s onset, improve cognition, develop gene therapy and advance understanding. Since 2004, the Foundation has provided $17 million in grants to fund research for individuals with Down syndrome at top institutions including University of California San Diego, Stanford University, University of Arizona, Johns Hopkins, Emory, MIT, and UCONN Health.

For more information on Funding Futures, or if you are interested in joining the Chicago or New York committee, please visit www.fundingfutures.us.