Regression: Understanding a sudden loss of skills in children or young adults with Down syndrome.
September 18, 2018
Registration link: http://bit.ly/RegressionAndDs
Regression is an unusual loss of previously acquired functional skills along with significant changes in behavior and personality. When it occurs, it most commonly occurs in teens and young adults but may occur in younger and older ages. Learn more about the known signs, causes or triggers and current research from two leading clinical experts, Drs. George Capone and Brian Chicoine, with over 20 years of experience providing medical care for children and adults with Down syndrome.
Dr. Capone shares the knowledge he has gained at the Kennedy Krieger Institute evaluating children who experience a dramatic loss (or plateauing) in their acquisition and use of language and social-attending skills. He will discuss when these changes could be signs of a co-existing autism disorder or other behavioral or psychiatric conditions such as ADHD, OCD or mood disorder.
Based on his extensive knowledge and many years of practical experience, Dr. Chicoine will discuss the evaluation of sudden functional changes in younger adults with Down syndrome in the context of regression and Alzheimer’s and suggest ways to thoughtfully approach these changes.
George T. Capone, M.D.
Dr. George Capone is an associate professor of pediatrics at the Johns Hopkins University School of Medicine. Dr. Capone is committed to research that explores the neurobiologic basis of cognitive impairment and co-morbid neurobehavioral and psychiatric disorders associated with Down syndrome.
He is also a research scientist and director of the Down Syndrome Clinic and Research Center (DSCRC) at Kennedy Krieger Institute, as well as an attending physician on the institute’s comprehensive rehabilitation unit.
Brian Chicoine, M.D.
Dr. Chicoine is the Medical Director of the Advocate Adult Down Syndrome Center in Park Ridge, IL. He is on the faculty of Family Medicine at Advocate Lutheran General Hospital. Dr. Chicoine is the cofounder of the Adult Down Syndrome Center that has served and documented the health and psychosocial needs of over 6000 adolescents and adults with Down syndrome since its inception in 1992.
A lifetime of support:Planning for a
family member who has special needs
Thursday, September 27
2 p.m. EDT
Toll free: 1-866-747-5167
Long-time LuMind RDS friend and supporter, Elizabeth McKenna, CFP, ChSNC, is hosting a complimentary webinar/teleconference along with Shirley B. Whitenack, Esq., to discuss financial planning for a family member who has special needs. McKenna, a Wealth Management Advisor at Merrill Lynch, and Whitenack, Co-Chair Elder & Special Needs Practice at Schenck Price Smith & King, LLP, will discuss some of the potential financial, social and legal issues facing parents who have a family member with a disability.
They’ll also talk about strategies for:
- Putting in place the things you want to happen now and after you’re gone
- Helping ensure your loved one’s current quality of life through supplemental income while maintaining government benefits
- Preserving your estate for your family or charitable organizations
• Balancing your financial goals for the benefit of your loved one with a disability and your entire household
For further information call Michelle MacDonald at 973-301-7645 or email firstname.lastname@example.org
Don’t miss an informative symposium highlighting Down Syndrome Research progress The Up of Down: An Insight Into the World of Down Syndrome Established by Alexander’s Angels, Inc. in 2007
This program is co-hosted by Alexander’s Angels, Inc. and New York Institute of Technology (NYIT) NYIT College of Osteopathic Medicine Riland Auditorium Old Westbury, NY 11568 Thursday, October 11, 2018 Time: 1:30 p.m
Please join us for dinner after the symposium.
At Libon Café, Jericho – Price $45
Send cash or check to Alexander’s Angels, Inc.
425 N Broadway #486, Jericho, NY 11753
Join LuMindRDS at the 33nd DSAC Convention on October 13th at the Sheraton Hotel Hartford South
Hampus Hillerstrom, President and CEO of LuMindRDS will be presenting “On the Verge of Research Breakthroughs”: Why We Should Be Excited & Rally Now. Our community, the public and the pharmaceutical industry once thought that therapies to improve health and independence in all ages with Down syndrome (Ds) are too complex. Learn about the recent scientific breakthroughs that challenge this thinking.
- Alzheimer’s therapies can soon be tested in people with Ds
- Silencing genes of concern is closer to becoming reality
- Digital medicine approaches may be prescribed to improve neurocircuitry
- Anti-inflammatory approaches may benefit Ds
- Other breakthroughs are ready for rigorous development
Stop by our booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.
To find out more information about the conference, go to the DSAC website at mydsact.org Our thanks to DSAC for inviting LuMindRDS and for the conference committee for their exceptional work organizing this conference.
Watch this live webinar on Blazing a Trail for Down Syndrome Inclusion in Clinical Trials: What’s Next?
December 13, 2018
Click Here to register
Now that Down syndrome research is ready for clinical trials, LuMind RDS is tackling the challenges that prevent individuals with Down syndrome from being included in trials.
In our upcoming webinar on December 13, James Hendrix, LuMind RDS Chief Scientific Officer, reviews the opportunities and challenges of the clinical trial process, from Phase 1 to FDA approval, and why DS-CTN is a game changer.
This webinar will provide families with a clear understanding of what to expect as we enter this exciting next step towards safe and effective interventions to improve health and independence for all individuals with Down syndrome.