Mar
7
Thu
Webinar: Implant for Severe Sleep Apnea: Where are we now?
Mar 7 @ 4:00 pm – 5:00 pm

Webinar: Implant for Severe Sleep Apnea: Where are we now?

 

Join us for a free live webinar on Thursday, March 7 @4pm EST.

Find out more about hypoglossal stimulation and how it can be used to treat sleep apnea. The implant is currently FDA-approved in adults, but the clinical study led by Dr. Hartnick is focused on expanding access for children. Dr. Hartnick will also share a hypothesis with very preliminary data on how this might help with speech.

To register, visit http://bit.ly/SleepApneaAdvances

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Mar
17
Sun
2019 New York City Half Marathon
Mar 17 all-day

Team LuMindRDS Runners as we run one the streets of NYC on March 17th!  If you would like to be a part of our 2019 team email Katie Coughlin at RunforDs@lumindrds.org

Click here to learn more about United Airlines NYC Half Marathon 

   Angela Amick - post race Matt Amick - post race Stephanie Mallick

Mar
21
Thu
WDSD – Virtual Run/Walk
Mar 21 all-day

WDSD V RW Banner 2016

Join the WDSD 321 Virtual Run/Walk – Actively Support Ds Research

World Down Syndrome Day (3/21) and, here at LuMind Research Down Syndrome, we’re wondering how YOU plan to celebrate.

Won’t you join us in *actively* showing your support of Down syndrome cognition research by signing up to participate in the World Down Syndrome Day 321 Virtual Run/Walk event?  This “virtual” event is an opportunity for people across the world to come together to advocate and self-advocate for persons with Down syndrome. We have a goal to unite a team of supporters across the world in raising funds for Down syndrome research by team fundraising throughout the month of March 2019.

To participate, we ask that you commit to taking part in some kind of physical activity throughout the month of March involving any sort of variation of the numbers 3-2-1.  Then on WDSD (3/21) post pictures, or video, of your 3-2-1 activity on our Facebook Group.  Participate on your own, or rally a team to help you participate and fundraise.  After registering, we encourage you to set up your fundraising page and ask friends and family for their support.  We have some great fundraising prizes for this year’s teams

Anyone who registers for the event will receive a cotton t-shirt and a medal, but only those registrations received before March 1 are guaranteed receipt of their shirt by March 21, 2019.

Some ideas:

  • Commit to walking or running 3.21 miles
  • Swim 321 laps in the pool
  • Hop on the elliptical or Stairmaster for 32.1 minutes

Don’t be afraid to get creative! We’ve had participants send us their photos of going for a run along Route 321 or commit to running 3.21 miles EVERY day throughout the month of March!

Whatever activity you decide to do from lacing up your running shoes, snap on your helmet, or dive in as part of the World Down Syndrome Day 321 Virtual Run/Walk and support cognition research!

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Mar
23
Sat
MDSC Annual Conference @ DCU Center
Mar 23 @ 8:00 am – 4:30 pm

Shaping the Future: The State of Down Syndrome Research Today

The 35th Annual Conference at the DCU Center in Worcester, MA on March 23rd.

We’re proud to partner with the Massachusetts Down Syndrome Congress (MDSC) team to collaborate and sponsor their first research-focused event for families — Shaping the Future: The State of Down Syndrome Research Today.

This year, the community will gather to delve deep into the promising developments in Down syndrome research and the exciting potential it has for the future with session topics including:

innovative clinical trials and studies underway nationwide that have promise to make a difference in people’s lives

the latest research on sleep apnea, nutrition and obesity behavior, inclusive education, clinical care medical and neurodevelopmental conditions, speech and language pathology, and Alzheimer’s disease

information on the latest groundbreaking research into “silencing the extra chromosome.”

how to participate in Down syndrome-specific research studies, including the National Institute for Health’s DS Connect portal.

The offerings address the needs of people with Down syndrome from childhood through aging adult with useful information for self-advocates, siblings, grandparents, support providers, education and medical professionals, and researchers.

To learn more and take advantage of the early-bird registration rates, visit the conference website before March 11.

Apr
4
Thu
2019 NDSS Adult Summit @ David L. Lawrence Convention Center
Apr 4 – Apr 6 all-day

Please join LuMind RDS at the 2019 NDSS Down Syndrome Adult Summit in Detroit, Michigan April 4 – 6, 2019. The summit will be hosted at the Detroit Marriott at the Renaissance Center.

The 2019 NDSS Down Syndrome Adult Summit is open to all individuals who play any role in the life of individuals with Down syndrome with a specific focus on caregivers, family members, professionals, and individuals with Down syndrome.

May
5
Sun
2019 Flying Pig Race Series
May 5 all-day

Run with us!

Join LuMind RDS Runners at the Flying Pig Race Series on  May 5th, 2019!

The Cincinnati Flying Pig Marathon is a beautiful course, which flies along the streets of Cincinnati, Covington, Newport, Mariemont, Fairfax and Columbia Township. Join us for the 5K, 10K, Half, Full, or Relay Marathon.

Click here to learn more about Flying Pig Race Series 

2019 Pittsburg Marathon Series
May 5 all-day

Run with us!

Join LuMind RDS Runners at the Pittsburg Marathon Series on  May 5th, 2019!

Join us for our 2nd time at this amazing race for a weekend full of family fun and races!  With so many distances to choose from – full marathon, half-marathon, five-person relay, 5K, kids one-mile and pet walk – you’re sure to find the race that’s right for every member of the family!

Click here to learn more about Pittsburg Marathon Series 

Jul
27
Sat
San Francisco Marathon – San Francisco, CA @ The Embacadero
Jul 27 all-day

2019 San Francisco Marathon, Half Marathon, and 5k Race Series (July 28, 2019): Guarantee your FREE entry into any of the races offered in San Francisco this summer. For More information contact Katie Coughlin.

Picture yourself racing on the roadbed of the Golden Gate Bridge as the California sun breaks through San Francisco’s iconic maritime fog. Bursting from the Embarcadero’s waterfront start line at the break of dawn. Racing through towering eucalyptus and redwood trees in Golden Gate Park. Passing AT&T Park with its atmosphere of game day anticipation and the crack of the bat.  There are 4 different race options, join us for a 5k, 10K, Half Marathon or Full Marathon

Oct
13
Sun
2019 Bank of America Chicago Marathon
Oct 13 all-day

Chicago is one of the World Major’s of Marathons and we have your GUARENTEED Entry to the 2019 Race.  Check out our website for all the details for running with LuMind RDS.

Click here to learn more about Chicago Marathon

 

If you received your own entry to the 2019 Chicago Marathon but still want to fundraise with our team email runfords@lumindrds.org

Oct
19
Sat
Down Syndrome Association of Connecticut Annual Convention @ Water's Edge Resort and Spa
Oct 19 all-day
DS ACT

Join LuMindRDS at the 34th DS ACT Convention on October 19th at the Water’s Edge Resort and Spa

Stop by our booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.

To find out more information about the conference, go to the DS ACT website at mydsact.org  Our thanks to DS ACT for inviting LuMindRDS and for the conference committee for their exceptional work organizing this conference.