Watch this live webinar for perspectives on Alzheimer’s Disease biomarkers in Down syndrome from leading experts, Dr. André Strydom and Dr. Juan Fortea, with the Londowns Consortium and the Down Alzheimer Barcelona Neuroimaging Initiative.
May 31, 2018
Register at http://bit.ly/AlzBiomarkers4Ds
|Dr. André Strydom (MRCPsych, MSc, PhD)
King’s College LondonDr. Strydom is a Professor in Intellectual Disabilities at the world-leading Institute of Psychiatry, Psychology and Neuroscience at King’s College London, where his research is focused on mental disorders in adults with neurodevelopmental conditions, including Down syndrome and other genetic disorders.Professor Strydom is particularly interested in ageing-related conditions such as dementia in adults with Intellectual Disability and Down syndrome. He is the chief investigator of the LonDownS consortium http://www.ucl.ac.uk/london-down-syndrome-consortium which consists of several research groups from prominent London universities (KCL, UCL, QMUoL, Birkbeck and the Crick Institute) working on various aspects of Alzheimer’s disease in Down syndrome. One of the important aims of the consortium is to deliver the knowledge, tools and expertise that is necessary to enable clinical trials of treatment to prevent or delay the onset of dementia in individuals with Down syndrome.
|Dr. Juan Fortea, Faculty Neurologist.
Hospital de la Santa Creu I Sant Pau and Fundació Catalana Síndrome de Down.Dr. Fortea has extensive experience in clinical practice and in medical research, whose focus is the early diagnosis of neurodegenerative diseases, particularly Alzheimer’s disease as well as its development in Down syndrome.Dr. Fortea’s PhD specialization was the study of pre-‐clinical Alzheimer disease in sporadic and familial cohorts through the use of multimodal MRI and CSF studies. Today, he is the principal investigator of multiple research projects in the field of Alzheimer’s disease and Down syndrome, and he leads the Neuroimaging Laboratory within the St Pau Memory Unit. One of his most significant contributions is the creation and implementation of a health plan for the screening of Alzheimer’s disease in adults with Down syndrome that includes longitudinal assessments and a comprehensive biomarker research program. This cohort is one of the largest in the world complete with multimodal biomarkers, including MRI and PET imaging, plasma and CSF as well as polysomnography tests.
Watch this live webinar on Pathways to Novel Cognition Targets with Potential to Help People with Down Syndrome with Dr. Craig Heller, PhD, Stanford
June 26, 2018
Register at http://bit.ly/DsResearchFromStanfordU
The ability to learn and remember is an important aspect of human life that is more difficult for individuals with Down Syndrome. Basic research, however, is leading to new approaches that have the promise of improving impaired cognitive functions. Some of these leads involve understanding the roles that sleep and daily rhythms play in our ability to form long-term memories. Other leads involve understanding and altering the neurochemical pathways involved in memory processing. Still other leads come from molecular knowledge of how genes triplicated in DS influence brain development. In his Webinar, Dr. Heller will discuss recent progress in these areas.
We saved you a spot in the SOLD OUT Napa to Sonoma Wine Country Half Marathon on July 14.
Run the Napa to Sonoma Wine Country Half Marathon for FREE with LuMind RDS Runners!
Registration for the Napa to Sonoma Wine Country Half Marathon sold out! Missed out? No problem – we’ve saved you a spot.
Click here to learn more about Napa to Sonoma
Miles for Breakthroughs 5k
July 14th @7:30am
Trinity Skyline Trail
Join the LuMind RDS as we unite for a common cause and raise funds at the 2018 Miles for Breakthroughs 5K. You will be joining a vibrant community of runners who are friends and family of a loved one with Down syndrome – or just enjoy running for a great cause!
Make a difference. By joining LuMind RDS Runners and participating in the Miles for Breakthroughs 5K, your fundraising efforts will go directly to support results-driven research to improve health and independence in persons with Down syndrome all over the world.
Want to connect with other runners at this event and other LuMind RDS Runners events across the country? If you have a passion for staying in shape and a passion for someone with Down Syndrome, please join our facebook group!
2018 NDSC Conference
July 12-15, 2018
Sheraton Dallas Hotel
LuMind RDS is proud to be a Wrangler sponsor of the 2018 NDSC Conference. We are looking forward to reuniting with family and friends on July 12th in Dallas to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome. Swing by the LuMindRDS Booth located at Booth 6 to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.
Come join us at Miles for Breakthroughs 5k run/walk at Trinity Skyline Trail July 14th @ 7:30am. To register or donate Click Here
To find out more information about the conference go to the NDSC website. Our thanks to NDSC and the conference committee for their exceptional work organizing this important meeting.
The LuMind Research Down Syndrome Foundation and The Bags 4 Breakthroughs Committee invite you to kick off the first Bags for BREAKTHROUGHS Cornhole Tournament.
August 4th Doors Open at 4pm
Scarlet Lane Brewing Company
Team Registration and Sponsorship Info:
|We’ll start with a round robin at 5 pm then play for prizes in winner/loser brackets. Both amateur/casual and pro/expert players are welcome.|
|Food and beverages will be available for purchase. Scarlet Lane Brewing will donate a portion of there proceeds that day to LuMindRDS.|
|Don’t have to throw the bags to join in on the food, beer and music. Come down and cheer on the teams and enter in to win one of our spectacular items!!!
You will be missing out but if you have made other summer plans you can still participate by DONATING. Just click here to help fund research for individuals with Down syndrome
Research and Retreat Weekend 2018
One weekend, one location, lots of families, activities, learning and fun– all the weekend of
August 9-12, 2018 at the Cincinnati Great Wolf Lodge!
Watch this live webinar on Parental Perspectives on Down Syndrome Research and 5 Ways to Rally for Research with Nicole White, PhD Candidate, Antioch University
August 30, 2018
Register at http://bit.ly/DsFamilySurvey
Join LuMind RDS & DSDN
and light up the night with us at the 2018 ROCKIN’ IT Run 5K.
Rockin’ It Run 5K
JW Marriott Desert Ridge Phoenix, AZ
Thursday, Sept. 6, 2018
Runners and walkers are welcome for an evening filled with glow sticks, dunk tank, auction items – and great music for a great cause. You will be joining a vibrant community of runners who are friends and family of a loved one with Down syndrome – or who just enjoy running for a great cause! For more information on sponsorship or attending this event please contact Katie Coughlin.
Regression: Understanding a sudden loss of skills in children or young adults with Down syndrome.
September 18, 2018
Registration link: http://bit.ly/RegressionAndDs
Regression is an unusual loss of previously acquired functional skills along with significant changes in behavior and personality. When it occurs, it most commonly occurs in teens and young adults but may occur in younger and older ages. Learn more about the known signs, causes or triggers and current research from two leading clinical experts, Drs. George Capone and Brian Chicoine, with over 20 years of experience providing medical care for children and adults with Down syndrome.
Dr. Capone shares the knowledge he has gained at the Kennedy Krieger Institute evaluating children who experience a dramatic loss (or plateauing) in their acquisition and use of language and social-attending skills. He will discuss when these changes could be signs of a co-existing autism disorder or other behavioral or psychiatric conditions such as ADHD, OCD or mood disorder.
Based on his extensive knowledge and many years of practical experience, Dr. Chicoine will discuss the evaluation of sudden functional changes in younger adults with Down syndrome in the context of regression and Alzheimer’s and suggest ways to thoughtfully approach these changes.
George T. Capone, M.D.
Dr. George Capone is an associate professor of pediatrics at the Johns Hopkins University School of Medicine. Dr. Capone is committed to research that explores the neurobiologic basis of cognitive impairment and co-morbid neurobehavioral and psychiatric disorders associated with Down syndrome.
He is also a research scientist and director of the Down Syndrome Clinic and Research Center (DSCRC) at Kennedy Krieger Institute, as well as an attending physician on the institute’s comprehensive rehabilitation unit.
Brian Chicoine, M.D.
Dr. Chicoine is the Medical Director of the Advocate Adult Down Syndrome Center in Park Ridge, IL. He is on the faculty of Family Medicine at Advocate Lutheran General Hospital. Dr. Chicoine is the cofounder of the Adult Down Syndrome Center that has served and documented the health and psychosocial needs of over 6000 adolescents and adults with Down syndrome since its inception in 1992.