We saved you a spot in the SOLD OUT Napa to Sonoma Wine Country Half Marathon on July 14.
Run the Napa to Sonoma Wine Country Half Marathon for FREE with LuMind RDS Runners!
Registration for the Napa to Sonoma Wine Country Half Marathon sold out! Missed out? No problem – we’ve saved you a spot.
Click here to learn more about Napa to Sonoma
2018 NDSC Conference
July 12-15, 2018
Sheraton Dallas Hotel
LuMind RDS is proud to be a Wrangler sponsor of the 2018 NDSC Conference. We are looking forward to reuniting with family and friends on July 12th in Dallas to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome. Swing by the LuMindRDS Booth located at Booth 6 to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.
Come join us at Miles for Breakthroughs 5k run/walk at Trinity Skyline Trail July 14th @ 7:30am. To register or donate Click Here
To find out more information about the conference go to the NDSC website. Our thanks to NDSC and the conference committee for their exceptional work organizing this important meeting.
The LuMind Research Down Syndrome Foundation and The Bags 4 Breakthroughs Committee invite you to kick off the first Bags for BREAKTHROUGHS Cornhole Tournament.
August 4th Doors Open at 4pm
Scarlet Lane Brewing Company
Team Registration and Sponsorship Info:
|We’ll start with a round robin at 5 pm then play for prizes in winner/loser brackets. Both amateur/casual and pro/expert players are welcome.|
|Food and beverages will be available for purchase. Scarlet Lane Brewing will donate a portion of there proceeds that day to LuMindRDS.|
|Don’t have to throw the bags to join in on the food, beer and music. Come down and cheer on the teams and enter in to win one of our spectacular items!!!
You will be missing out but if you have made other summer plans you can still participate by DONATING. Just click here to help fund research for individuals with Down syndrome
Research and Retreat Weekend 2018
One weekend, one location, lots of families, activities, learning and fun– all the weekend of
August 9-12, 2018 at the Cincinnati Great Wolf Lodge!
This past January, the sixth annual Funding Futures Chicago (FFC) event raised over $145,000 for LuMind™ Research Down Syndrome Foundation (LuMind RDS) to fund Down syndrome research. Funding Futures began in 2012 when a group of dedicated families in the Chicagoland area decided to host a fundraising event for LuMind RDS (then DSRTF) with live music, food, drinks and a silent auction. Since the first event, FFC has raised over $700,000 for LuMind RDS, and continues to grow. On September 20, Funding Futures New York (FFNY) will make its debut at City Winery in New York City.
“We are excited to bring this event to another city,” says Margie Doyle, Director of Development at LuMind RDS and co-founder of FFC. “Over the last six years, we’ve created a community in Chicago that supports and propels the advancement of Down syndrome research, and we look forward to doing the same in New York.”
The September event will be organized by a new committee established in New York City, comprised of parents, friends and family of children with Down syndrome and LuMind RDS supporters. The committee members include Genevieve Shaw Brown, Rachel Adams, Joan O’Neil Ipsen, Austin Gordon, Joey Orfini, James Orfini and Katie Peraino.
Proceeds from the Funding Futures events support research projects funded by LuMind RDS to prevent Alzheimer’s onset, improve cognition, develop gene therapy and advance understanding. Since 2004, the Foundation has provided $17 million in grants to fund research for individuals with Down syndrome at top institutions including University of California San Diego, Stanford University, University of Arizona, Johns Hopkins, Emory, MIT, and UCONN Health.
For more information on Funding Futures, or if you are interested in joining the Chicago or New York committee, please visit www.fundingfutures.us.
7th Annual Funding Futures Chicago!
Save the date and mark your calendar for Saturday, January 19th, 2019 from 7-midnight.
We are going to light up the night at Fitzgerald’s in our continued support of cognition research dedicated to improve learning, provide greater independence and prevent the onset of early Alzheimer’s disease for people with Down syndrome. Tickets available soon at www.fundingfutures.us
SILENT AUCTION – LIVE MUSIC – GOOSE ISLAND CRAFT BEERS – FABULOUS FOOD, WINE & SPIRIT
Join our Austin Half Marathon Team as we hit the pavement to raise money for Down syndrome research!!! Take on the streets of this great city in one of the best half marathons in the US. Make your miles count with and chance to run free AND make a difference in the lives of people with Down Syndrome.
February 17th, 2019. For more information visit our Austin Half Marathon Information Page.
You’re invited to join us for the most magical race weekend on Earth at Walt Disney World® Resort where your favorite classic Disney characters are the hosts! With race distances for all skill levels, including Kids Races, a 5K, 10K, Half Marathon and Marathon, participants will enjoy special Disney entertainment on course and earn one-of-a-kind Disney finisher medals. Plus, runners can take on race challenges to earn even more bling. Whether you’re a beginner or a veteran runner, everyone can experience the magic of running through Walt Disney World® Resort!
Webinar: Implant for Severe Sleep Apnea: Where are we now?
Join us for a free live webinar on Thursday, March 7 @4pm EST.
Find out more about hypoglossal stimulation and how it can be used to treat sleep apnea. The implant is currently FDA-approved in adults, but the clinical study led by Dr. Hartnick is focused on expanding access for children. Dr. Hartnick will also share a hypothesis with very preliminary data on how this might help with speech.
To register, visit http://bit.ly/SleepApneaAdvances