Mar
24
Sat
MDSC Annual Conference @ DCU Center
Mar 24 all-day

Stay tuned for more information about MDSC’s 2019 Annual Conference!!

Apr
10
Tue
MDSC Adult Conference 2018 @ Bentley University
Apr 10 all-day

 

LuMind RDS is proud to be a sponsor of the 2018 MDSC Adult Conference. We are looking forward to reuniting with our Down syndrome affiliates on April 28th in Waltham, MA to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome.   Swing by the LuMindRDS Booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.

To find out more information go to www.mdsc.org.  Hope to see you there!!!

Apr
25
Wed
Webinar: Don’t let obstructive sleep apnea (OSA) get in the way of cognitive potential!
Apr 25 @ 4:00 pm – 5:00 pm

Obstructive Sleep Apnea: Don’t let it get in the way of cognitive potential!

Jessica and Jesse Rivera with Dr. Christopher Hartnick. Image used with permission from Mass Eye and Ear

Live webinar with Dr. Brian Skotko from the Mass General Hospital Down Syndrome Program and Dr. Christopher Hartnick from Mass Eye and Ear

Wednesday, April 25, 2018

Don’t let obstructive sleep apnea (OSA) get in the way of cognitive potential! OSA occurs in nearly 3 out of every 4 people with Down syndrome. Symptoms are often silent, with no warning to caregivers and clinicians. Untreated sleep apnea may result in worsening medical issues and loss of cognitive functioning. Register now at http://bit.ly/321Sleep for this live webinar on April 25th to learn about the latest ways to detect apnea in persons with Down syndrome and new advances in how to treat obstructive sleep apnea led by Dr. Brian.Skotko from MGHDownSyndrome and Dr. Christopher Hartnick from MassEyeAndEar. A webinar not to be missed for every parent or caregiver!

May
4
Fri
2018 Flying Pig Race Series
May 4 @ 8:30 am

Run with us!

Join LuMind RDS Runners at the Flying Pig Race Series on  May 5th, 2018!

The Cincinnati Flying Pig Marathon is a beautiful course, which flies along the streets of Cincinnati, Covington, Newport, Mariemont, Fairfax and Columbia Township. Join us for the 5K, 10K, Half, Full, or Relay Marathon.

Click here to learn more about Flying Pig Race Series 

2018 Pittsburg Marathon Series
May 4 @ 8:30 am

Run with us!

Join LuMind RDS Runners at the Pittsburg Marathon Series on  May 6th, 2018!

Join us for a weekend of family fun and races!  With so many distances to choose from – full marathon, half-marathon, five-person relay, 5K, kids one-mile and pet walk – you’re sure to find the race that’s right for every member of the family!

Click here to learn more about Pittsburg Marathon Series 

May
31
Thu
Webinar: A New Era For Alzheimer’s Biomarkers In Down Syndrome @ Webinar
May 31 @ 12:00 pm – 1:00 pm

Watch this live webinar for perspectives on Alzheimer’s Disease biomarkers in Down syndrome from leading experts, Dr. André Strydom and Dr. Juan Fortea, with the Londowns Consortium and the Down Alzheimer Barcelona Neuroimaging Initiative.

May 31, 2018
12pm EST
Register at http://bit.ly/AlzBiomarkers4Ds

 

Dr. André Strydom (MRCPsych, MSc, PhD)
King’s College LondonDr. Strydom is a Professor in Intellectual Disabilities at the world-leading Institute of Psychiatry, Psychology and Neuroscience at King’s College London, where his research is focused on mental disorders in adults with neurodevelopmental conditions, including Down syndrome and other genetic disorders.Professor Strydom is particularly interested in ageing-related conditions such as dementia in adults with Intellectual Disability and Down syndrome. He is the chief investigator of the LonDownS consortium http://www.ucl.ac.uk/london-down-syndrome-consortium which consists of several research groups from prominent London universities (KCL, UCL, QMUoL, Birkbeck and the Crick Institute) working on various aspects of Alzheimer’s disease in Down syndrome. One of the important aims of the consortium is to deliver the knowledge, tools and expertise that is necessary to enable clinical trials of treatment to prevent or delay the onset of dementia in individuals with Down syndrome.
Dr. Juan Fortea, Faculty Neurologist.
Hospital de la Santa Creu I Sant Pau and Fundació Catalana Síndrome de Down.Dr. Fortea has extensive experience in clinical practice and in medical research, whose focus is the early diagnosis of neurodegenerative diseases, particularly Alzheimer’s disease as well as its development in Down syndrome.Dr. Fortea’s PhD specialization was the study of pre-­‐clinical Alzheimer disease in sporadic and familial cohorts through the use of multimodal MRI and CSF studies. Today, he is the principal investigator of multiple research projects in the field of Alzheimer’s disease and Down syndrome, and he leads the Neuroimaging Laboratory within the St Pau Memory Unit. One of his most significant contributions is the creation and implementation of a health plan for the screening of Alzheimer’s disease in adults with Down syndrome that includes longitudinal assessments and a comprehensive biomarker research program. This cohort is one of the largest in the world complete with multimodal biomarkers, including MRI and PET imaging, plasma and CSF as well as polysomnography tests.
Jun
26
Tue
Webinar: Pathways to Novel Cognition Targets with Potential to Help People w/ Ds
Jun 26 @ 3:00 pm – 4:00 pm

Watch this live webinar on Pathways to Novel Cognition Targets with Potential to Help People with Down Syndrome with Dr. Craig Heller, PhD, Stanford

June 26, 2018

3pm EST

Register at http://bit.ly/DsResearchFromStanfordU

The ability to learn and remember is an important aspect of human life that is more difficult for individuals with Down Syndrome. Basic research, however, is leading to new approaches that have the promise of improving impaired cognitive functions. Some of these leads involve understanding the roles that sleep and daily rhythms play in our ability to form long-term memories. Other leads involve understanding and altering the neurochemical pathways involved in memory processing. Still other leads come from molecular knowledge of how genes triplicated in DS influence brain development. In his Webinar, Dr. Heller will discuss recent progress in these areas.

Jul
14
Sat
2018 Napa to Sonoma Wine Country Half Marathon @ Cuvaison Carneros Winery
Jul 14 all-day
2018 Napa to Sonoma Wine Country Half Marathon @ Cuvaison Carneros Winery | Napa | California | United States

We saved you a spot in the SOLD OUT Napa to Sonoma Wine Country Half Marathon on July 14.

Run the Napa to Sonoma Wine Country Half Marathon for FREE with LuMind RDS Runners!

Registration for the Napa to Sonoma Wine Country Half Marathon sold out!  Missed out? No problem – we’ve saved you a spot.

Click here to learn more about Napa to Sonoma

Dallas Miles For Breakthroughs @ Trinity Skyline Trail
Jul 14 @ 7:30 am – 8:30 am

Miles for Breakthroughs 5k

July 14th @7:30am

Trinity Skyline Trail

Dallas, TX

 

Join the LuMind RDS as we unite for a common cause and raise funds at the 2018 Miles for Breakthroughs 5K. You will be joining a vibrant community of runners who are friends and family of a loved one with Down syndrome – or just enjoy running for a great cause!

Make a difference. By joining LuMind RDS Runners and participating in the Miles for Breakthroughs 5K, your fundraising efforts will go directly to support results-driven research to improve health and independence in persons with Down syndrome all over the world.

Register or donate today!

Want to connect with other runners at this event and other LuMind RDS Runners events across the country? If you have a passion for staying in shape and a passion for someone with Down Syndrome, please join our facebook group!

Jul
15
Sun
National Down Syndrome Congress (NDSC) Conference 2018 @ Sheraton Dallas Hotel
Jul 15 – Jul 18 all-day

 

National Down Syndrome Congress

2018 NDSC Conference

July 12-15, 2018

Dallas, Texas

Sheraton Dallas Hotel

 

LuMind RDS is proud to be a Wrangler sponsor of the 2018 NDSC Conference. We are looking forward to reuniting with family and friends on July 12th in Dallas to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome.   Swing by the LuMindRDS Booth located at Booth 6 to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.

Come join us at Miles for Breakthroughs 5k run/walk at Trinity Skyline Trail July 14th @ 7:30am.  To register or donate Click Here

To find out more information about the conference go to the NDSC website. Our thanks to NDSC and the conference committee for their exceptional work organizing this important meeting.