Down Syndrome Association of Central Florida is hosting the 11th Annual Florida Down Syndrome Conference at Nemours Children’s Hospital.
Keynote Speaker: Dr. William Mobley, PhD from University of California San Diego.
To register or for more information please go to www.DSACF.org
LuMind RDS is proud to be a Bronze sponsor of the 2019 DSAIA Conference. We are looking forward to reuniting with our Down syndrome affiliates on February 28th in St.Louis to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome. Swing by the LuMindRDS Booth located at Booth 9&10 to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.
To register or find out more information about the conference go to the DSAIA website. Our thanks to DSAIA and the conference committee for their exceptional work organizing this important meeting.
LuMind RDS is proud to be a sponsor of the 2018 MDSC Adult Conference. We are looking forward to reuniting with our Down syndrome affiliates on April 28th in Waltham, MA to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome. Swing by the LuMindRDS Booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.
To find out more information go to www.mdsc.org. Hope to see you there!!!
Research and Retreat Weekend 2018
One weekend, one location, lots of families, activities, learning and fun– all the weekend of
August 9-12, 2018 at the Cincinnati Great Wolf Lodge!
You’re invited to the Conference on the
Progress of Down Syndrome Research
Wednesday, March 20, 2019
We invite you to attend this great research symposium on March 20 @ 1:30pm in Mineola, New York organized by our friends at Alexander’s Angels featuring great research that has been supported by LuMind RDS. It’s a great opportunity to hear about progress in Down syndrome research directly from the researchers. The symposium is open to families and healthcare providers. Space is limited so you can reserve your spot today online at winthrop.cloud-cme.com.
The Up of Down: An Insight into the World of Down Syndrome is a Joint Provider Conference with Alexander’s Angels, Inc. and NYU Winthrop Hospital. The focus is to highlight the Down syndrome research progress and consists of speakers from a broad spectrum of specialties. Current findings will be presented by faculty from prestigious universities with affiliated hospitals on their campus. The conference will cover a wide range of topics including plans to explore a broad number of topics related to Down syndrome.
Roger Reeves, PhD.
Rethinking Alzheimer Disease in the Context of Down Syndrome
William Mobley, MD, PhD
Gene Dosage in Cellular Models of Trisomy 21
Stefan Pinter, PhD
Review the FDA Approved Study Looking at the Effect of Hypoglossal Nerve Stimulation in Treating Children Ages 10 to 21 with Down Syndrome and Significant Obstructive Sleep Apnea (OSA)
Christopher Hartnick, MD, MS
At the end of this symposium, learners should be able to:
• Discuss improvements in learning and memory in individuals with Down syndrome
• Assess and discuss why we see early onset Alzheimer’s in individuals with Down syndrome
• Explain research findings regarding cellular models
• Discuss common developmental and behavioral observations of individuals with Down syndrome
• Identify medical predispositions in individuals with Down syndrome
• Benefits of Hypoglossal Nerve Stimulation
• Discuss the effects of Down syndrome on the immune system
Please register at winthrop.cloud-cme.com
SPACE IS LIMITED. REGISTER EARLY.
NYU Winthrop Research & Academic Conference Center
101 Mineola Boulevard
Mineola, NY 11501
Registration is FREE and includes educational materials, refreshments and CME-CE credit certificate.
Shaping the Future: The State of Down Syndrome Research Today
The 35th Annual Conference at the DCU Center in Worcester, MA on March 23rd.
We’re proud to partner with the Massachusetts Down Syndrome Congress (MDSC) team to collaborate and sponsor their first research-focused event for families — Shaping the Future: The State of Down Syndrome Research Today.
This year, the community will gather to delve deep into the promising developments in Down syndrome research and the exciting potential it has for the future with session topics including:
→ innovative clinical trials and studies underway nationwide that have promise to make a difference in people’s lives
→ the latest research on sleep apnea, nutrition and obesity behavior, inclusive education, clinical care medical and neurodevelopmental conditions, speech and language pathology, and Alzheimer’s disease
→ information on the latest groundbreaking research into “silencing the extra chromosome.”
→ how to participate in Down syndrome-specific research studies, including the National Institute for Health’s DS Connect portal.
The offerings address the needs of people with Down syndrome from childhood through aging adult with useful information for self-advocates, siblings, grandparents, support providers, education and medical professionals, and researchers.
To learn more and take advantage of the early-bird registration rates, visit the conference website before March 11.
2019 NDSC Conference
June 27-30, 2019
David Lawrence Convention Center
When you say research we say Rally! Start your Saturday at the LuMind IDSC Research Rally from 7-9am with a Q&A panel featuring DSMIG clinicians, breakfast bar, and opportunities to learn more about research with rally themed games and activities. The Research Rally is located in Ballroom B & C on the 3rd Floor.
You may RSVP starting Monday, March 25th. You will need your convention registration number. To register for the research rally please go to https://www.ndsccenter.org/annual-convention/researchmedicalcare/research-rally-rsvp/
LuMind IDSC is proud to be the RESEARCH RALLY sponsor of the 2019 NDSC Conference. We are looking forward to reuniting with family and friends on June 27th in Pittsburg to continue collaborating in our shared goals of improving health and independence in individuals with Down syndrome. The LuMind IDSC booth is located at 100. Stop by to learn more about the exciting research, our Clinical Trial Network and the new LuMind IDSC initiatives for the Down syndrome community.
Friday, June 28, 1:30-3:00pm
Dr. James Hendrix (CSO) and Hampus Hillerstrom (CEO) are leading a presentation on Leading the Way in Down Syndrome Research: Why We Should Be Excited About The Future. The presentation will be held in the City View Room 320, 3rd Floor.
To find out more information about the conference go to the NDSC website. Our thanks to NDSC and the conference committee for their exceptional work organizing this important meeting.
The LuMind IDSC Foundation Family Weekend provides families an opportunity to connect and meet other families with a loved one with Down syndrome while individuals with Down syndrome experience a fun-filled weekend amongst their friends.
We hope you will join us for the 2019 Family Weekend! 2018 was our largest Family Weekend yet with over 900 families that joined us at 17 Great Wolf Lodge locations – 16 in the United States and 1 in Canada. We anticipate an even larger turnout for 2019!
Visit the event page for more details, www.lumindrds.org/2019familyweekend.
Join LuMindRDS at the 34th DS ACT Convention on October 19th at the Water’s Edge Resort and Spa
Stop by our booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.
To find out more information about the conference, go to the DS ACT website at mydsact.org Our thanks to DS ACT for inviting LuMindRDS and for the conference committee for their exceptional work organizing this conference.