Mar
20
Wed
The Up of Down: An Insight Into the World of Down Syndrome @ NYU Winthrop Research & Academic Conference Center
Mar 20 @ 1:30 pm

You’re invited to the Conference on the

Progress of Down Syndrome Research

Wednesday, March 20, 2019

We invite you to attend this great research symposium on March 20 @ 1:30pm in Mineola, New York organized by our friends at Alexander’s Angels featuring great research that has been supported by LuMind RDS. It’s a great opportunity to hear about progress in Down syndrome research directly from the researchers. The symposium is open to families and healthcare providers. Space is limited so you can reserve your spot today online at winthrop.cloud-cme.com.

The Up of Down: An Insight into the World of Down Syndrome is a Joint Provider Conference with Alexander’s Angels, Inc. and NYU Winthrop Hospital. The focus is to highlight the Down syndrome research progress and consists of speakers from a broad spectrum of specialties. Current findings will be presented by faculty from prestigious universities with affiliated hospitals on their campus. The conference will cover a wide range of topics including plans to explore a broad number of topics related to Down syndrome.

Keynote Speaker

  Roger Reeves, PhD.

Rethinking Alzheimer Disease in the Context of Down Syndrome

William Mobley, MD, PhD

Gene Dosage in Cellular Models of Trisomy 21

Stefan Pinter, PhD

Review the FDA Approved Study Looking at the Effect of Hypoglossal Nerve Stimulation in Treating Children Ages 10 to 21 with Down Syndrome and Significant Obstructive Sleep Apnea (OSA)

Christopher Hartnick, MD, MS

Learning Objectives

At the end of this symposium, learners should be able to:

• Discuss improvements in learning and memory in individuals with Down syndrome

• Assess and discuss why we see early onset Alzheimer’s in individuals with Down syndrome

• Explain research findings regarding cellular models

• Discuss common developmental and behavioral observations of individuals with Down syndrome

• Identify medical predispositions in individuals with Down syndrome

• Benefits of Hypoglossal Nerve Stimulation

• Discuss the effects of Down syndrome on the immune system

 

Please register at winthrop.cloud-cme.com

SPACE IS LIMITED. REGISTER EARLY.
NYU Winthrop Research & Academic Conference Center

Main Level

101 Mineola Boulevard

Mineola, NY 11501

Registration is FREE and includes educational materials, refreshments and CME-CE credit certificate.

Mar
21
Thu
WDSD – Virtual Run/Walk
Mar 21 all-day

WDSD V RW Banner 2016

Join the WDSD 321 Virtual Run/Walk – Actively Support Ds Research

World Down Syndrome Day (3/21) and, here at LuMind Research Down Syndrome, we’re wondering how YOU plan to celebrate.

Won’t you join us in *actively* showing your support of Down syndrome cognition research by signing up to participate in the World Down Syndrome Day 321 Virtual Run/Walk event?  This “virtual” event is an opportunity for people across the world to come together to advocate and self-advocate for persons with Down syndrome. We have a goal to unite a team of supporters across the world in raising funds for Down syndrome research by team fundraising throughout the month of March 2019.

To participate, we ask that you commit to taking part in some kind of physical activity throughout the month of March involving any sort of variation of the numbers 3-2-1.  Then on WDSD (3/21) post pictures, or video, of your 3-2-1 activity on our Facebook Group.  Participate on your own, or rally a team to help you participate and fundraise.  After registering, we encourage you to set up your fundraising page and ask friends and family for their support.  We have some great fundraising prizes for this year’s teams

Anyone who registers for the event will receive a cotton t-shirt and a medal, but only those registrations received before March 1 are guaranteed receipt of their shirt by March 21, 2019.

Some ideas:

  • Commit to walking or running 3.21 miles
  • Swim 321 laps in the pool
  • Hop on the elliptical or Stairmaster for 32.1 minutes

Don’t be afraid to get creative! We’ve had participants send us their photos of going for a run along Route 321 or commit to running 3.21 miles EVERY day throughout the month of March!

Whatever activity you decide to do from lacing up your running shoes, snap on your helmet, or dive in as part of the World Down Syndrome Day 321 Virtual Run/Walk and support cognition research!

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Mar
23
Sat
MDSC 2019 Annual Conference @ DCU Center
Mar 23 @ 8:00 am – 4:30 pm

Shaping the Future: The State of Down Syndrome Research Today

The 35th Annual Conference at the DCU Center in Worcester, MA on March 23rd.

We’re proud to partner with the Massachusetts Down Syndrome Congress (MDSC) team to collaborate and sponsor their first research-focused event for families — Shaping the Future: The State of Down Syndrome Research Today.

This year, the community will gather to delve deep into the promising developments in Down syndrome research and the exciting potential it has for the future with session topics including:

innovative clinical trials and studies underway nationwide that have promise to make a difference in people’s lives

the latest research on sleep apnea, nutrition and obesity behavior, inclusive education, clinical care medical and neurodevelopmental conditions, speech and language pathology, and Alzheimer’s disease

information on the latest groundbreaking research into “silencing the extra chromosome.”

how to participate in Down syndrome-specific research studies, including the National Institute for Health’s DS Connect portal.

The offerings address the needs of people with Down syndrome from childhood through aging adult with useful information for self-advocates, siblings, grandparents, support providers, education and medical professionals, and researchers.

To learn more and take advantage of the early-bird registration rates, visit the conference website before March 11.

May
5
Sun
2019 Pittsburg Marathon Series
May 5 all-day

 

Join LuMind RDS Runners at the Pittsburg Marathon Series on May 5th!

Join us for our 2nd time at this amazing race for a weekend full of family fun and races!  With so many distances to choose from – full marathon, half-marathon, five-person relay, 5K, kids one-mile, and pet walk – you’re sure to find the race that’s right for every member of the family!

Click here to learn more about Pittsburg Marathon Series 

2019 Flying Pig Race Series
May 5 all-day

Join LuMind RDS Runners at the Flying Pig Race Series on May 5th!

The Cincinnati Flying Pig Marathon is a beautiful course, which flies along the streets of Cincinnati, Covington, Newport, Mariemont, Fairfax, and Columbia Township. Join us for the 5K, 10K, Half, Full, or Relay Marathon.

Click here to learn more about Flying Pig Race Series 

Jul
27
Sat
San Francisco Marathon – San Francisco, CA @ The Embacadero
Jul 27 all-day

2019 San Francisco Marathon, Half Marathon, and 5k Race Series (July 28, 2019): Guarantee your FREE entry into any of the races offered in San Francisco this summer. For More information email runfords@lumindrds.org

Picture yourself racing on the roadbed of the Golden Gate Bridge as the California sun breaks through San Francisco’s iconic maritime fog. Bursting from the Embarcadero’s waterfront start line at the break of dawn. Racing through towering eucalyptus and redwood trees in Golden Gate Park. Passing AT&T Park with its atmosphere of gameday anticipation and the crack of the bat.  There are 4 different race options, join us for a 5k, 10K, Half Marathon or Full Marathon

Oct
13
Sun
2019 Bank of America Chicago Marathon
Oct 13 all-day

Chicago is one of the World Major’s of Marathons and we have your GUARENTEED Entry to the 2019 Race.  Check out our website for all the details for running with LuMind RDS.

Click here to learn more about Chicago Marathon

 

If you received your own entry to the 2019 Chicago Marathon but still want to fundraise with our team email runfords@lumindrds.org

Oct
19
Sat
2019 Down Syndrome Association of Connecticut Annual Convention @ Water's Edge Resort and Spa
Oct 19 all-day
DS ACT

Join LuMindRDS at the 34th DS ACT Convention on October 19th at the Water’s Edge Resort and Spa

Stop by our booth to learn more about the exciting research that is getting closer to clinical trials and the new LuMind RDS initiatives for the Down syndrome community.

To find out more information about the conference, go to the DS ACT website at mydsact.org  Our thanks to DS ACT for inviting LuMindRDS and for the conference committee for their exceptional work organizing this conference.

 

 

Nov
3
Sun
2019 TCS New York City Marathon
Nov 3 @ 8:30 am

 

Join LuMind RDS Runners at the New York City Marathon on November 3th!

 

LuMind RDS Runners will be accepting new runners until September 18, 2019. Once you have joined the LuMind RDS Team and are registered, you will be directed to set up your charity fundraising page.

NYC Marathon asks that you raise a minimum of $3,000 for the charity you run withClick here to learn more.

For more information on the New York City Marathon!