The Down Syndrome Research and Treatment Foundation was founded in 2004 by a dedicated group of parents and leading scientists who are committed to finding treatments to improve learning, memory, and speech, and prevent the early onset of Alzheimer’s Disease in persons with Down syndrome. We changed our name to the LuMind Foundation in 2014 and merged with Research Down Syndrome in 2015 to create LuMind Research Down Syndrome (RDS) Foundation. Interested in joining the Board? Click here to learn what it takes.
Board of Directors
|Amy Allison||Hampus Hillerstrom, President and CEO|
|Hector Guinness||Marly Chevrette, Marketing Specialist|
|Ryan Hartman||Katie Coughlin, Special Events Coordinator|
|Patrick Kannan||Jill Reslock, Operations and Special Events|
|Christopher Lis, Ph.D.||Coordinator|
|Michael Mannor, Ph.D.|
Amy Allison, Kansas City, Missouri
Amy Allison currently serves as the Executive Director of the Down Syndrome Guild of Greater Kansas City (DSG). DSG, founded in 1984 by a group of dedicated parents of children with Down syndrome, provides programs and services to improve the quality of life for individuals with Down syndrome and their families. DSG serves over 800 families caring for a loved one with Down syndrome in the greater Kansas City area on both sides of the state line. In addition to her work with DSG, Amy Allison serves as a member of the Board of Directors for Down Syndrome Affiliates In Action (DSAIA). In 2009, Amy’s leadership and expertise helped DSAIA organize a conference in Washington DC where more than 300 Down syndrome advocates from 35 states gathered at the U.S. capitol to lobby Capitol Hill. The purpose of this effort was to seek federal funds to help spread accurate information about prenatally diagnosed disabilities and to raise additional support for Down syndrome (Ds) related causes.
Amy received a double bachelor’s degree in psychology and sociology from Brigham Young University.
Ryan M. Hartman, Hood River, Oregon — Board Chair
Ryan Hartman is President and CEO of Insitu Inc., a Boeing Company, a $450 million company, where he provides corporate leadership and strategic guidance, and holds responsibility for the organization’s overall execution of its business plan and investments. He also serves on the Board of Directors for The Next Door, a not-for-profit organization focused on families and children in need, and is president of the National Industrial Defense Association – Pacific Northwest Chapter.
Ryan received a BS and an MS at Embry-Riddle Aeronautical University, with further study in aerospace engineering at Arizona State University. Ryan and his wife, Stephanie, have a son with Ds.
Hector Guinness, London, UK
Since 2012, Hector Guinness has been with HgCapital, where he focuses on investments in growing technology companies, and represents Hg as a board observer at Allocate Software, Evaluate and TraceOne. Prior to joining HgCapital, Hector spent three years working at Bain & Company in London and Mumbai.
Hector graduated from the University of Oxford with a first class honours degree in Biological Science. He and his wife, Lucy Guinness are the proud parents of Alfred and a new baby girl, Jemima.
Patrick Kannan, Ashburn, Virginia
Patrick is the Vice President of Finance at Exostar, LLC., a leader in secure cloud-based solutions that improve identity access management, collaboration, and supply chain management for regulated industries. As Vice President of Finance, he oversees the operational accounting and customer service, as well as all of Exostar’s finance and strategic planning efforts. Prior to joining Exostar he was the Controller at Data Systems and Solutions (DS&S), a world leader in asset management and predictive maintenance. The company is an international technology leader in various markets, including nuclear, aerospace & defense, and energy.
Patrick has more than 20 years of finance and accounting experience. In addition to holding and undergraduate degree in Accounting from Radford University, Patrick is a Certified Public Accountant (CPA) and a member of the American Institute for Certified Public Accountants (AICPA).
Christopher G. Lis, Ph.D., Chicago, Illinois
Christopher G. Lis is the President and Chief Operating Officer of Lexington Health Network, a post-acute care Network in the Greater Chicago area with 14 locations. Dr. Lis was formerly on the Executive Team at Cancer Treatment Centers of America serving in several senior leadership roles including Chief, Outcomes Research and Vice President of Market Insights, Vice President of Research and Development, and Chief Strategy Officer.
Dr. Lis currently serves on the board of directors of the Illinois Chapter of The Leukemia and Lymphoma Society (LLS) and on the editorial boards of two medical and scientific journals. He has published over fifty manuscripts in the peer-reviewed medical and scientific literature, served as a key contributor to three Harvard Business School (HBS) Case studies, and has been interviewed and quoted regarding advice to leaders in Harvard Business School Press books as well as a two books on leadership by New York Times Best-selling author Debra Benton. Christopher previously served on the Hospital Advisory Committee for The Leapfrog Group, on an Expert Panel for the National Patient Advocate Foundation (NPAF), and as an expert reviewer and/or invited thought leader to foreign government and private research agencies in the Netherlands, New Zealand, and England. Christopher and his wife Heather are the proud parents of four wonderful children.
Mike Mannor, Ph.D., Notre Dame, Indiana
Mike Mannor is a strategy professor at the University of Notre Dame. His research focuses on strategic leadership, corporate governance, and knowledge creation, with a particular emphasis on how the characteristics and experiences of CEOs and top management teams can help and hurt organizations in their pursuit of sustainable competitive advantage. His research has been published in the leading management journals and he has been interviewed or quoted on NPR, CNN, BusinessWeek, the USA Today, the LA Times, Yahoo, and a variety of other media outlets. He teaches primarily in Notre Dame’s MBA program, with classes on corporate strategy and business model innovation.
Paul Murasko, Hopkinton, Massachusetts
Paul is currently Sr. Director of Multi-Channel Marketing for Sunovion pharmaceuticals leading digital strategy and execution as well as the telesales team. Previously he was with Johnson & Johnson (J&J) primarily in the Medical Device and Diagnostics (MD&D) space. While Director of Digital Marketing for J&J, he led the digital integration for $19.8 billion acquisition of Synthes and was chairman of the Digital Acceleration team for the MD&D sector.
Paul has been actively involved in charity/nonprofit work for over 20 years as a volunteer, committee member, and board director. He currently serves on the executive committee of the Tri- County United Way serving a 2nd vice chair and is in the process of developing a foundation – Special & Determined – with his wife Marla to help families with children who have Down syndrome with education and resources to navigate today’s complex support system and the access to services for early intervention to build a path to a stronger more inclusive society.
Paul and Marla have two children, the youngest, Jacob has Ds.
Bjoern Sperling, Cambridge, Massachusetts
Before becoming the senior medical director of clinical development for Alzheimer’s disease with Biogen, Bjoern spent many years in medical affairs as the global therapeutic lead for Multiple sclerosis. He has previously authored or co-authored more than 30 papers and presented multiple abstracts at scientific congresses including as an invited speaker, and has given educational presentations at universities worldwide.
Bjoern also brings great insight about the opportunities research can have on emerging adults with Down syndrome from his own 22-year-old son, Sebastian. “Sebastian has a beautiful mind, always curious, interested and eager to study new things, he brings a lot of insights and joy into our lives, and I want to do my best to protect his and others minds from the devastating effect of Alzheimer’s disease. My hope is that I through LuMind RDS can support the research and work that is so much needed to improve and preserve the quality of life of people with Ds,” says Bjoern. Bjoern and his family moved from Denmark 6 years ago and now live in Massachusetts.
Emeritus Board Members
Ann Margaret Chrisney
Patricia White Flatley, MD
Virginia Bennett Flynn
Michael M. Harpold, PhD
Roger and Dawn Kafker
Todd Kinsella, PhD.
Sohail Masood, Pharm.
William Mobley, MD, PhD
Patty O’Brien White