The Down Syndrome Research and Treatment Foundation was founded in 2004 by a dedicated group of parents and leading scientists who are committed to finding treatments to improve learning, memory, and speech, and prevent the early onset of Alzheimer’s Disease in persons with Down syndrome. We changed our name to the LuMind Foundation in 2014 and merged with Research Down Syndrome in 2015 to create LuMind Research Down Syndrome Foundation. Interested in joining the Board? Click here to learn what it takes.
Board of Directors
Staff Management Team
|Amy Allison||Marla Murasko, Interim Executive Director|
|Terry W. AnCel||Marly Chevrette, Marketing Specialist|
|Virginia Bennett Flynn||Katie Coughlin, Special Events Coordinator|
|Hector Guinness||Jill Reslock, Operations and Special Events Coordinator|
|Michael Mannor, Ph.D.|
Amy Allison, Kansas City, Missouri
Amy Allison currently serves as the Executive Director of the Down Syndrome Guild of Greater Kansas City (DSG). DSG, founded in 1984 by a group of dedicated parents of children with Down syndrome, provides programs and services to improve the quality of life for individuals with Down syndrome and their families. DSG serves over 800 families caring for a loved one with Down syndrome in the greater Kansas City area on both sides of the state line. In addition to her work with DSG, Amy Allison serves as a member of the Board of Directors for Down Syndrome Affiliates In Action (DSAIA). In 2009, Amy’s leadership and expertise helped DSAIA organize a conference in Washington DC where more than 300 Down syndrome advocates from 35 states gathered at the U.S. capitol to lobby Capitol Hill. The purpose of this effort was to seek federal funds to help spread accurate information about prenatally diagnosed disabilities and to raise additional support for Down syndrome related causes.
Terry W. AnCel, Chicago, Illinois
Terry AnCel currently serves as President/CEO of Chicago-area contracting company Hayes Mechanical, a pioneer in the boiler, construction, and repair industry. With Terry at the helm, Hayes Mechanical is experiencing a steady, well-planned growth program. The company has a special loyalty to the city it has called home for now over 90 years. Out of that loyalty arises a sense of civic duty: Mr. AnCel, for example, has served as Chairman of the Martin Luther King Scholarship Dinner Committee through the Illinois Commission on Diversity and Human Relations, helping award college scholarships to Chicago public school students.Terry also serves as Chairman of Power Maintenance Construction in Bellevue, IL; Trustee of International Pension Fund for the Boilermakers in Kansas City, MO; and Director, Winfield Community Bank in Winfield, IL.
With Hayes Mechanical as the lead sponsor, Terry’s family and friends presented its seventh annual Golf Outing to benefit LuMind in 2014. Year after year, this flagship event keeps growing in popularity, with more than half a million dollars raised for Down syndrome cognition research. His youngest daughter, Christine, has been the face of the Hayes Annual Golf Outing since its inception.
Terry is married to Carol and has seven children and three grandchildren. Terry received his BA from University of Minnesota.
Virginia Bennett Flynn
Ginny is the head of compliance and audit at the Global Legal Entity Indentifier Foundation. Ms. Flynn is a senior leader with broad-based international experience in financial services, consulting services, consumer goods manufacturing, internal audit, finance and compliance operations. Her Background includes leadership and strategy-setting roles reporting at the Board and senior executive levels providing advice, support and oversight to key company initiatives.
Ryan M. Hartman, Hood River, Oregon — Board Chair
Ryan Hartman is President and CEO of Insitu Inc., a Boeing Company, a $450 million company, where he provides corporate leadership and strategic guidance, and holds responsibility for the organization’s overall execution of its business plan and investments. He also serves on the Board of Directors for The Next Door, a not-for-profit organization focused on families and children in need, and is president of the National Industrial Defense Association – Pacific Northwest Chapter.
Ryan received a BS and an MS at Embry-Riddle Aeronautical University, with further study in aerospace engineering at Arizona State University. Ryan and his wife, Stephanie, have a son with Down syndrome.
Hector Guinness, London, UK
Since 2012, Hector Guinness has been with HgCapital, where he focuses on investments in growing technology companies, and represents Hg as a board observer at Allocate Software, Evaluate and TraceOne. Prior to joining HgCapital, Hector spent three years working at Bain & Company in London and Mumbai.
Hector graduated from the University of Oxford with a first class honours degree in Biological Science. He and his wife, Lucy Guinness are the proud parents of Alfred and a new baby girl, Jemima.
Hampus Hillerstrom, Boston, Massachusetts
Hampus Hillerstrom co‐founded NeuroPhage Pharmaceuticals in 2006 , a company developing a novel approach for treating Alzheimer’s, Parkinson’s and other protein misfolding diseases, and he currently serves as Executive Vice President and Chief Financial Officer. Previously he spent three years as an associate at leading European biotech venture capital firm HealthCap where he participated in a large number of investment transactions including several IPOs. Hampus also spearheaded a project at AstraZeneca to evaluate decision‐making leading to Phase III clinical trials.
Hampus holds a Masters in Economics and Finance from the University of St. Gallen (Switzerland), an MBA from Harvard Business School, and an MSc in Health Sciences and Technology from MIT/Harvard Medical School (HST). Hampus and his wife have one child with Down Syndrome.
Patrick Kannan, Ashburn, Virginia
Patrick is the Vice President of Finance at Exostar, LLC., a leader in secure cloud-based solutions that improve identity access management, collaboration, and supply chain management for regulated industries. As Vice President of Finance, he oversees the operational accounting and customer service, as well as all of Exostar’s finance and strategic planning efforts. Prior to joining Exostar he was the Controller at Data Systems and Solutions (DS&S), a world leader in asset management and predictive maintenance. The company is an international technology leader in various markets, including nuclear, aerospace & defense, and energy.
Patrick has more than 20 years of finance and accounting experience. In addition to holding and undergraduate degree in Accounting from Radford University, Patrick is a Certified Public Accountant (CPA) and a member of the American Institute for Certified Public Accountants (AICPA).
Christopher G. Lis, Chicago, Illinois
Christopher G. Lis is the Chief Strategy Officer and member of the Executive Team at Lexington Health Network, a post-acute care Network in the Greater Chicago area with 14 locations. Dr. Lis was formerly on the Executive Team at Cancer Treatment Centers of America serving in several leadership roles including Chief, Outcomes Research and Vice President of Market Insights, Vice President of Research and Development, and Chief Strategy Officer.
Dr. Lis currently serves on the board of directors of the Illinois Chapter of The Leukemia and Lymphoma Society (LLS) and on the editorial boards of two medical and scientific journals. He has published over fifty manuscripts in the peer-reviewed medical and scientific literature, served as a key contributor to three Harvard Business School (HBS) Case studies, and has been interviewed and quoted regarding advice to leaders in Harvard Business School Press books as well as a book on leadership called ‘CEO Material’ authored by New York Times Best-selling author Debra Benton. Dr. Lis previously served on the Hospital Advisory Committee for The Leapfrog Group, on an Expert Panel for the National Patient Advocate Foundation (NPAF), and as an expert reviewer and/or invited thought leader to foreign government and private research agencies in the Netherlands, New Zealand, and England.
Christopher and his wife Heather have four children. Their fourth child has Down syndrome.
Mike Mannor, Ph.D., Notre Dame, Indiana
Mike Mannor is a strategy professor at the University of Notre Dame. His research focuses on strategic leadership, corporate governance, and knowledge creation, with a particular emphasis on how the characteristics and experiences of CEOs and top management teams can help and hurt organizations in their pursuit of sustainable competitive advantage. His research has been published in the leading management journals and he has been interviewed or quoted on NPR, CNN, BusinessWeek, the USA Today, the LA Times, Yahoo, and a variety of other media outlets. He teaches primarily in Notre Dame’s MBA program, with classes on corporate strategy and business model innovation.
Mike holds a BS from Aquinas College, an MBA from Grand Valley State University, and a PhD from Michigan State University. Mike and his wife have five children. Their second child, Sophia, has Down syndrome.
Deborah Morris, New York, New York
Deborah Morris is the Zonal Executive for AIG PC based in New York. In this role, Deborah is responsible for a significant book of commercial insurance including Property, Casualty, Healthcare, Financial Lines and Program business. Deborah spent the majority of her career with AIG in the International Financial Lines unit, spanning 85 countries, where she held several senior positions including COO and Commercial Institutions Manager. During her 21 years in International Financial Lines Deborah held a number of senior overseas assignments including London and Hong Kong.
Deborah graduated with a Bachelor degree in Business Administration from the College of William and Mary. Deborah and her husband Andrew have two children; Sophia (10) and Benjamin (8). Sophia has Down syndrome and is Deborah’s inspiration, giving rise to her passion about advocacy and therapeutic programming for people with Down syndrome. She is the Founder and President of GiGi’s Playhouse NYC, a Down syndrome awareness and achievement center located in Harlem, NYC.
Paul Murasko, Hopkinton, Massachusetts
Paul is currently Sr. Director of Multi-Channel Marketing for Sunovion pharmaceuticals leading digital strategy and execution as well as the telesales team. Previously he was with Johnson & Johnson (J&J) primarily in the Medical Device and Diagnostics (MD&D) space. While Director of Digital Marketing for J&J, he led the digital integration for $19.8 billion acquisition of Synthes and was chairman of the Digital Acceleration team for the MD&D sector.
Paul has been actively involved in charity/nonprofit work for over 20 years as a volunteer, committee member, and board director. He currently serves on the executive committee of the Tri- County United Way serving a 2nd vice chair and is in the process of developing a foundation – Special & Determined – with his wife Marla to help families with children who have Down syndrome with education and resources to navigate today’s complex support system and the access to services for early intervention to build a path to a stronger more inclusive society.
Paul and Marla have two children, the youngest, Jacob has Down syndrome.
Bjoern Sperling, Cambridge, Massachusetts
Before becoming the senior medical director of clinical development for Alzheimer’s disease with Biogen, Bjoern spent many years in medical affairs as the global therapeutic lead for Multiple sclerosis. He has previously authored or co-authored more than 30 papers and presented multiple abstracts at scientific congresses including as an invited speaker, and has given educational presentations at universities worldwide.
Bjoern also brings great insight about the opportunities research can have on emerging adults with Down syndrome from his own 22-year-old son, Sebastian. “Sebastian has a beautiful mind, always curious, interested and eager to study new things, he brings a lot of insights and joy into our lives, and I want to do my best to protect his and others minds from the devastating effect of Alzheimer’s disease. My hope is that I through LuMind can support the research and work that is so much needed to improve and preserve the quality of life of people with Ds,” says Bjoern. Bjoern and his family moved from Denmark 6 years ago and now live in Massachusetts.
Emeritus Board Members
Ann Margaret Chrisney
Patricia White Flatley, MD
Michael M. Harpold, PhD
Roger and Dawn Kafker
Todd Kinsella, PhD.
Sohail Masood, Pharm.
William Mobley, MD, PhD
Patty O’Brien White